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Joined: Sep 2009
Posts: 177
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Sep 2009
Posts: 177
1. google
2. rarely
3. yes, nope


Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear

Joined: Sep 2008
Posts: 711
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Sep 2008
Posts: 711
Actually, I found the Mouth Cancer Forum in the UK 1st and they directed me to OCF. Great bunch of people there also, including our great friend Liz.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
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"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
google
check in most days
this and mouth cancer support group our uk sister site.
Thanks David xxx

Last edited by Cookey; 07-13-2011 03:16 AM.

Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Joined: Jan 2009
Posts: 225
"OCF across the pond"
Gold Member (200+ posts)
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"OCF across the pond"
Gold Member (200+ posts)

Joined: Jan 2009
Posts: 225
I googled a question and it directed me to OCF. Our oncologist wondered why I chose the Americans over the Brits. Well, your site came up first,that's why. Maybe A for American and B for Brit? Anyway I am so glad I found you all. I check in as much as I can.


Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
Joined: Jul 2009
Posts: 453
"OCF Down Under"
Platinum Member (300+ posts)
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"OCF Down Under"
Platinum Member (300+ posts)

Joined: Jul 2009
Posts: 453
From memory (it's been a while and feels like a lifetime) it was Megan who found me searching in desperation for information on our cancer council website - I am forever grateful. Steve was newly diagnosed and I was trying to find as much information as I could on SCC. Thankfully I ended up here.

I check in a few times a week, sometimes just as a lurker but if I feel I can help in some way will always try smile

This group has been my sole support group. Love each and every one of you. My mum is my rock in the real world.



Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
Internet - in a panicked state!! smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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