| | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Not today he said, he still has two drains in left,and the trach they capped off yesterday, he had only 3 drains, they took 1 out already from his neck one left in the neck and 1 in the thigh, last time it was 5! He is in good spirits, but wants to come home of course, maybe tomorrow, we will see, he came home on the 6th day after his first surgery and this one is like a walk in the park to him he says. He was ready to come home the day after! lol I am trying to find out if he has to have another swallow study after this one, they didn't touch the original flap, they built up under it so I don't see why he should, but I'm not a doctor. I want to ask the doc bout HPV, I don't think he has been tested. Never heard a word bout it in any conversations with the docs. Well let me get back to work here, it's been a busy weekend sorry haven't updated til now. Going to call and talk to his nurse here in a bit. He's had wonderful nurses Thank God taking care of him over the holiday weekend.
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2011 Posts: 571 | Wow, Sue! Great that things are going so well! I am so glad that Ron is upbeat and positive. I am so happy for you, Ron and your whole family! He's come so far! Congratulations!
Sandy
xoxox
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | He's coming home today, I'm at work waiting for him to text me he's ready. coming home with the drain in his leg and the trach and of course feeding tube. He's happy cuz he needs to sleep! He's going to his mom's for a couple days to get some sleep before he comes back to my house, my dog will try and lick his face and won't want to stop so he has to be careful.
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 | That's great he's doing so well especially after being so undecided about the surgery at the outset! I agree on the sleep, plus it should give you a bit of a break!, hugs and take care!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Will Ron have a visiting nurse? The trach needs to be cleaned daily. That was one part of my after-surgery that I always hated. It was very uncomfortable but it had to be done.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2010 Posts: 49 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2010 Posts: 49 | Suez,
I am so happy for Ron and you!! It's great to hear all the good news! Wishing Ron a speedy recovery and sending him all our love. Hugs!!
My Dad:
Squamous Cell Carcinoma,Stage 2, Right side of Tongue
Dx 7/19/10
Partial glossectomy and neck dissection 8/18/10
Reocurrence: 04/2011 Base/back of Tongue right side
Surgery: Partial glossectomy, flap 06/15/2011
Rad and Chemo finished on Sept/ Oct 2011
Recovery and assimilation. Enjoying life
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