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| | Joined: Mar 2010 Posts: 30 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Mar 2010 Posts: 30 | Hi everyone! I am working on adding information to the website about palliative care and could use some help. There is not a lot of information out there related specifically to oral cancer. So if anyone has information on this topic or would like to share your personal story, please contact me either by email: [email protected] or at 949-723-4400. Thank you! Jamie O�Day Treatment Facilities Coordinator | | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Bringing this back to the top
Guys, we really want to get this right. Some of you know a poster that has, or are personally dealing with this issues in your own families. Anyone that would be kind enough to share your thoughts and feelings about this important subject so we get it right on the main OCF site, your input would be greatly appreciated. Please contact Jamie at the number above
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2011 Posts: 571 | There is detailed information in the Blogs section that chronicles many aspects of palliation. Maybe some of those posters would be willing to help.
Good luck. It's an important endeavor.
Sandy
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
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