| | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | So sorry, Jim. My thoughts and prayers are with you and your family during this painful time.
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Oct 2007 Posts: 83 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2007 Posts: 83 | Jim, there are just no words for this. I am so sorry to hear of the loss of your son. Knee mail out to you and your family.
Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
| | | | | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | | "OCF across the pond" Senior Member (100+ posts)
Joined: Apr 2011 Posts: 131 | Thinking of you jim and sending prayers and love to you and yours
Jayne x
Scc nasal cavity /hard palate
Surgery removal of septum and roof of mouth 15/3/11 cl margins
Rt and cisplatin 6 weeks starting 24/5/11
Obturator
Age 45
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Well, it will be a couple of hours and I will see my son after 1yr but not as I wanted. Right now my mind is full of wondering about how he will look. He should be in the coffin the opposite of normal because of the damage to his body where the car hit him. Damn I hate this. I am a softy anyway and hope I can hold back a little with the tears and crying. You that have been thru this understand what I mean. One of lifes crookedest roads to travel. Always wondering what could be around the bend.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | My Dear Jim:
Let the tears flow if you have to and I'm sure you will. One thing I remember being said to me when I looked at my son in his casket was, "Julie, what you're looking at is a shell. YOUR SON IS ALREADY IN GODS LOVING HANDS AND LOOKING DOWN AT YOU." Give him a kiss, because he'll know you're doing it. Bless you and your family. Everyone is thinking of you.
Love,
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2011 Posts: 571 | Dear Jim, Today will be one of the hardest days, if not the hardest day, you will face. I hope you have plenty of people with you today--let them be strong for you. When you are alone and the grief won't let you rest, please know that you have your OCF family to be strong for you as well. You are loved.
The first year is full of anniversaries and "firsts". But, as time passes it will get easier. However, it will never go away. I don't think we'd want it to anyway.
My heart is with you today and everyday,
Sandy
xoxox
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | I have no words to express how sorry I am that you are going through this Jim.
Don't try holding back the tears as I believe it can be a release.
Know my love and thoughts are with you always.
Gabriele xxx
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I surer couldn't hold back the tears as I did my best to comfort his kids. There were hundreds of people there and in line for hours. I was in a few funerals at Arlington and for soem dignitaries including Einstein, but have never seen more mourners than last nite. People flew in and many drove for hours to get there last nite. He was well liked and a natural at making someone laugh and enjoy life. I am so thankful for all my friends in OCF and the many friends to comfort not only me but my family. There was a Dr we know ell that put shirts in my car because of my weight loss. People are so kind given the chance. Love you and them all. Be safe and keep a smile.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2010 Posts: 15 "OCF across the pond" Member | | "OCF across the pond" Member
Joined: Jul 2010 Posts: 15 | Such sadness Jim... our prayers will give you and your family strength to get through..Our fondest love and thoughts are with you all.
Kathiex
sister diagnosed June 2010 back of tongue 30 intensive RT and 2 chemo (will confirm what stage later) finished treatment Sept 2010. Peg dependent unable to swallow. 6 teeth removed prior to treatment. HPV?
| | | | | Joined: Jul 2004 Posts: 188 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jul 2004 Posts: 188 Likes: 1 | Jim,
I know that no words can console a parent on the loss of a child, but know that you and your family are in the thoughts and prayers of your OCF family.
My sincere condolences.
ChuckF
SCC Stage IV right tonsil T3N3M0. Dx 08/03. Clinical Trial:8 weeks Taxol, Carboplatin then Hydrea, 5FU, IMRT x's 48, SND, Iressa x 2yrs. Now 20 years out and thriving. Dealing with a Prostate cancer diagnosis now. Add a Bladder cancer diagnosis to all the fun.
It's always something
"Adversity doesn't build character, it reveals it."
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