| Joined: Jun 2011 Posts: 147 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2011 Posts: 147 | Hello all, I am caring for my husband. He has had 5 radiation treatments so far and the PEG inserted today. He has had terrible constipation from the pain meds. He is so blocked that he cannot eat and feels awful. We tried laxatives and a Fleet. Nothing has worked so far. Any advice. I am concerned because he is not eating and cannot afford to lose weight. He is thin and needs to gain. We were in a good rhythm of gaining weight and then this happened. Tried everything nurse suggested. Is there any danger here? EllenB
caregiver for husband diagnosed with oral cancer May 2011 after 6 mo node lft side and several in jaw involved Base of Tongue Stage IVA 7 weeks radiation Cisplatin-3 chemos (beginning,middle,end) IntraV administration
| | | | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Oct 2006 Posts: 383 | Lived that pain after going on the patch (I was told the pain meds consume liquids and harden your stools). I tried everything to have a bowel movement. Finally lots of natural laxatives and a lot of painful, forceful attempts I had a movement. If he isn't on a feeding tube yet try to stay regular with fiber and laxatives but it is important to have that movement! If he can't make it happen on his own get your doctor involved (Soon). Best Wishes, Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
| | | | Joined: Nov 2010 Posts: 167 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Nov 2010 Posts: 167 | If it were me,I would call the doctor for advice. I found that my MD's were really great about helping me through the rough spots that always seemed to pop up after regular office hours so don't be shy and wait till morning if your gut tells you that you shouldn't. Bowel obstruction can be a real concern so it's a very good idea to be attentive to this kind of thing.
There's probably something that the Doc can recommend/prescribe that will give your husband relief.
Take care
Jennifer (39) 02/10 SCCa Tongue & Base, HPV- 03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out Back at work and feeling good 03/24/11! 12/20/11 - 9 month f/u PET/CT - all clear!
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | sounds oh so familiar. I wasn't about to give up the pain pills or patches yet they caused the constipation. The prescription laxatives did not work, nor did folk remedies like prune juice etc and I was in imminent danger of ruining some resident's day by needing a bowel obstruction procedure. Glycerin suppositories to the rescue. You can buy them at any drugstore without a script. I just doubled the recommended dose and used them daily. It's important to follow the instructions literally: not to go into squeamish details but full insertion and holding it in for 20 minutes are needed for this method. No risk of overdose, no bad side effects, and it works when all else fails. As usual a nurse, not a doctor knew the answer to a common patient side effect. IMO it would not hurt to try a suppository
Charm
Last edited by Charm2017; 06-30-2011 06:36 AM.
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | You are a man with a plan charm!!! I held my advice as I was useless here becuse my constipation is easily taken care of with a glass of milk or any kind of dairy... Call it an allergic reaction if you will but it works wonders for me.  the flax seed oil I have daily also keeps things running smoothly! Good luck Ellen!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Ellen, I feel for you and him. I went through an excruciating bout of this and nothing seemed to help. Without getting too graphic, my RO nurse finally suggested that I get some rubber gloves. Afraid so, but that was the only thing that finally did the trick - and I'd tried all the laxatives, suppositories and general oral things that are supposed to in this case. I live alone so it was all up to me.
There you have it.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Wow!, David2 - gonna keep that one in mind. Wish my son had known about the rubber gloves when he was struggling and I was shopping the drugstores for aids! Just goes to show, help comes to us in many different ways!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | A simple though necessary evil. In fact a lifesaver.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Same exact experience as David 2 but I solved my problem at home without consulting anyone. Also didn't think about the gloves. Believe me I was desperate so you know the saying "desperate people do desperate things".
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jun 2011 Posts: 147 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2011 Posts: 147 | Thanks all. We did laxatives and suppositories. Things broke up a bit so will keep up a regimen to help
caregiver for husband diagnosed with oral cancer May 2011 after 6 mo node lft side and several in jaw involved Base of Tongue Stage IVA 7 weeks radiation Cisplatin-3 chemos (beginning,middle,end) IntraV administration
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