| | Joined: Jun 2011 Posts: 5 Member | OP  Member
Joined: Jun 2011 Posts: 5 | hello, IM new to this forum. I've had one surgery on soft palet in Jan 2011. The Docters said clear margains, go live your life. Well, I start 33 radiation treatments Monday,I can not figure out this site or find spell check.
Last edited by steves959; 06-26-2011 05:43 AM.
brush bio 12-20,pos.bio 1-4 pet scan jan.,excision lesion of palat,w/local flap closure.second tumor noticed on 30 day follow up,bio taken on 90 day follow up. Radiation starts 6-27-11
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Hi Steve - I'm so glad you found this site. There are lots of caring and compassionate people here who have been where you are and can offer information and support. If you click on the main page of this site: "Oral Cancer Foundation" (see top of page) you will see lots of links to things you might be interested in. For specific info on Radiation, just click on this link: http://oralcancerfoundation.org/facts/radiation.htmFinding out everything you can will help you to ask the right questions here or when you see your doctor. It helps, too for people to better answer any questions you have if you can add something to your signature line (like you see on mine below). Just go to the top of this page, click where it says "My Stuff" and then on Profile. Scroll all the way down to the signature box, and just put in whatever information you have about your treatment experience. There are abbreviations on the "Forums" page (see above) if you need them, and also an alphabetized list of abbreviations at: http://web.utk.edu/~aalix/abbreviations.html I haven't seen a spell check but after you write a message you can always hit the "Preview Reply" to fix anything you like. Don't worry about spelling - just tell us what's happening with you and ask any questions you like.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Steve, welcome to OCF. There is no spell check on the forum. Some computers like MAC's have it built right in. Or Im sure there are other programs you can install on your computer so that you have the spell check. Dont worry about this, we all make spelling errors and are used to reading around the boo-boos.  There are a few posts that will help you to figure out the forum. Try reading "New here, read this first" http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=65994#Post65994'common abbreviations' http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=93217#Post93217One of the best things to read about OC is the 'Draft Copy' http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=65980#Post65980Please feel free to post questions or to send me a PM if you have further questions about navigating the forum.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi Steve welcome. D
Nt worry about spell check even with it my computer autocorrectsand I still end up with mistakes - sorry you have to be here but there are a few who've had similar surgeries an a lot of us who've had radiation. Look through the site there's lotsnof info on radiation and how people handled it.
Tell us a little more about your original surgery and treatments - that way if you do have any questions people have some back ground info. Good luck with radiation. It's not fun but doable. Take care...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | There is a GREAT difference between "go live your life" and "I start 33 radiation treatments Monday". Hang in there.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Welcome Steve! This is a great group of people, please ask any questions you might have.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
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