hi i am a new member with tounge cancer

Bill, welcome to OCF my friend, glad you found us, sorry you had to. I hope you find all the support and information you are looking for. When you get a shot, tell us a bit more about yourself...notice my signature, it helps give everyone a frame of reference.

Good luck

Eric

So glad you found us, Bill - there are so many wonderful, supportive and compassionate people here who can help you and and have been where you are. My son had SCC=Squamous cell cancer on the right side of his tongue (see under my signature) and he's doing just fine, now almost 5 years ago. You can get through this. If you want to include more information about your treatment, just go to the top of this page where it says "My Stuff" and scroll all the way down the page to the "signature" and fill in whatever you like about yourself. There is a list of abbreviations on the "Forums" page and also here if you want to check what some of the cancer terms mean:
http://web.utk.edu/~aalix/abbreviations.html
Stay with us, Bill - and let us know how you are doing.

Hey there welcome - I'm a tongue cancer fighter too ! There are a bunch of us here - sorry you have to be here but this is a great place for information, support and just being able to sound off if you need to.

Not sure if you've been treated already, are waiting, or still trying to get over the initial shock! But whatever stage you're at- good luck and take care!

Welcome to OCF, Bill.

Bill, welcome. We'll all look forward to hearing more about you and helping out in any way we can.

Welcome Bill
Lean on us for support and info or just to talk

Jayne

hi and thank you for the warm welcome.i had surgery april 5 2011 and the removed a massive agressive toumer along with half of my tougne skin graffs from my wrist fill the hole,it feels like i have a sock in my mouth.radiation followed that an now i start kemo all as preventive measures so it will not come back.i also start outpatent speach therepy does anybody know if that works for helping me to eat solid food again.I am sorry i have so many questions but i am so new to all tyhis and i am overweilmed please bear with me thanks Bill

Bill,

Never feel like you have to apologize for asking questions...its why we are here, to support each other. This stuff is overwhelming and can make you crazy which is why we need people who've walked a similar path to relate to and help cope with this crap.

Seeing a speech pathologist is beneficial and can help, there are limitations depending on physical limitations etc but its important to see one.

Hang in there

Eric

Hi bill - I had a large ish (2.4 cm x 1.4 cm ) tumor removed from my tongue on the left side - I lost maybe a third of my tongue. It was done in February. They followed it up with radiation and chemo for the same reasons as you. Though I did radiation and chemo at the same time which makes me wonder what chemo they are giving you after the fact... My tongue had begun to heal - I was eating fine - until they radiated me and now it's swollen again. So I know the feeling - eating isn't too hard just slow going - I've found soft foods - but not mushy - the easiest to manipulate - things like eggs - fruits - etc... But those things depend on the state of your mouth after radiation. Usually I put the food in on my good side chew and swallow - if I have trouble I take a sip of water to help the process. . Not sure if you had a neck dissection ( I'm assuming you did) seeing a lymphedemiologist may help with the swelling of your tongue, neck and face... They help reduce the build up of fluids and help promote the fluid to build a new pathway so the swelling eventually subsides. Good luck with the speech therapy. I may do that once the swelling goes away - depending on what I need I'm good with most letters except t's and d's - but I definitely know the sock feeling!

Take care!