| | Joined: Jul 2010 Posts: 49 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jul 2010 Posts: 49 | Hi everyone,
Just wanted to post an update about my dad. His surgery started around 7:45 today. All the doctors and nurses were extremely sweet as they always are. There was also a very sweet lady that recited for us a beautiful prayer and eased our minds. My dad sends his greeting to everyone on the forum and thanks you all for your love and support.
The tumor is toward the back of the tongue so they will split his jaw and lip to access it and remove it. He will also have another neck dissection. He is going to going to have an inmediate reconstruction with skin graft. I can't recall if I mentioned that there was a new lump in the back of his month, by there the wisdom teeth grow, on the right side, which had a bliser like appearance. It turns out it is the tumor too, so it is posibble he will have a mandibulectomy too, but we don't know until they get to that area.
A few minutes ago his nurse informed us he was sleeping now under the effects of the anesthesia and his breathing tube was placed on him.
I really loved that beautiful prayer, it asked for God to guide the doctor's hands and my dad to remember He loves him.
How I wish you all would have listened to it, it was a prayer for you too. Hugs.
Love,
Benfry
My Dad:
Squamous Cell Carcinoma,Stage 2, Right side of Tongue
Dx 7/19/10
Partial glossectomy and neck dissection 8/18/10
Reocurrence: 04/2011 Base/back of Tongue right side
Surgery: Partial glossectomy, flap 06/15/2011
Rad and Chemo finished on Sept/ Oct 2011
Recovery and assimilation. Enjoying life
| | | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | I will keep your dad, you and your family in my prayers. My mom underwent the "whipple" surgery at Johns Hopkins which is a 10 hour surgery so I know first hand how difficult the waiting is. Hugs.
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Just saw this, Benfry. Your Dad's surgery is probably over with by now, but just want you to know I'm sending prayers to you both right now for good results and healing. Let us know how he is when you have a chance.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2011 Posts: 571 | Hi Benfry,
What a beautiful and uplifting post to write on such a stressful day for you! You truly are a gift to your dad. That he would think of others today is astonishing and extremely kind. I'd say he is lucky to have you--but luck had nothing to do with raising a kind, generous and thoughtful child. I see his influence in you. He taught by example and he taught well.
Thank you for your kind words. I'm keeping you, your family and your dear father in my thoughts and prayers.
Love,
Sandy
<3 xoxoxox
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Good luck and God Bless him and your family for a great recovery! I'll be the next one, Ron is going thru with his second operation, Doc is getting him set up for pretesting and surgery will let you all know when that will be. 10 hour surgery he was told, taking from his thigh again for reconstruction, hoping it's not in his jaw, won't know til doc goes in. So hang in there Benfry!
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2010 Posts: 128 | Benfry, hugs and prayers out to you and your family.. please continue to keep us posted..
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux..
Painfree and rested 6/19/12
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Benfry - I do hope everything went well today with your Dad's surgery. How nice to hear of the kindness of the doctors and the nurses and especially the sweet lady who said a prayer for everyone. It really helps to know at a time like this that people really do care about you. Please know that we are thinking of you wishing the very best for you and your Dad. Let us know when you can how things are going.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 | God bless- my prayers are with you and your dad
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2010 Posts: 49 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jul 2010 Posts: 49 | Hi everyone,
Thank you so much. I will never have words to express my gratitute towards your support. I feel so thankful to have found this forum, it really makes a difference and we feel we are not alone...
I'd like to post an update on the surgery. The doctors say that both, the removal of the tumor and the reconstruction of the tongue went well. He didn't need a mandibulectomy. He will stay in the hospital for about 10 more days...
I will keep posting with updates and questions...
Hugs,
Benfry
My Dad:
Squamous Cell Carcinoma,Stage 2, Right side of Tongue
Dx 7/19/10
Partial glossectomy and neck dissection 8/18/10
Reocurrence: 04/2011 Base/back of Tongue right side
Surgery: Partial glossectomy, flap 06/15/2011
Rad and Chemo finished on Sept/ Oct 2011
Recovery and assimilation. Enjoying life
| | | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Thanks for the update. I pray that each day your dad feels a little bit better. You must be exhausted. I know first hand how emotionally draining all this is. Make sure you take care of you. Hugs
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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