| Joined: Jan 2010 Posts: 12 Member | OP Member Joined: Jan 2010 Posts: 12 | surgery 6mo ago. Since then, I have had worsening pain in roof of mouth area. Anyone know about that? Cancer since 97. 3x tongue and tonsil. cancer free since 2007. Any help appreciated. Have been to doc and just had a cat & pet. no prob. but pain! Feels soft in roof of mouth. Doc pres. meds to put on it.
I started in 1997 with a swollen glad in my neck. It was stage 2 tonsil cancer. Had radiation and a week hosp. stay. 2 mo. tube in throat. Lost 40 lbs. c. free until 2005. Tongue had surgery. Did good. 2007, another tongue, surgery. Am cancer free now. Went to OHSU. they are wonderful.
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Maybe some bone necrosis due to radiotherapy?? I have no idea - but if it persists persist in bothering your dr.!!! Best of luck! Fingers and toes crossed that it is something minor!
Last edited by Cheryld; 06-12-2011 09:55 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jan 2010 Posts: 12 Member | OP Member Joined: Jan 2010 Posts: 12 | I think I have it handled. My doc put me on Gabapentin, and it seems to be helping. works to calm the tramatized nerves. What a relief. Also I take ty3. Thank you Cheryl for posting.
I started in 1997 with a swollen glad in my neck. It was stage 2 tonsil cancer. Had radiation and a week hosp. stay. 2 mo. tube in throat. Lost 40 lbs. c. free until 2005. Tongue had surgery. Did good. 2007, another tongue, surgery. Am cancer free now. Went to OHSU. they are wonderful.
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | No problem!! So glad you are feeling better! Hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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