#13372 06-21-2002 10:13 AM | | Anonymous Unregistered | | Anonymous Unregistered
| My name is Dinah...I have cancer of the tonsil with neck metasisis. That alwyas sounds so formal!! (And I am not that at all.)
This was just found and diagnosed in October 2001, when I went in to have a benigh lymph node removed, yep you guessed it - there was a tumor underneath. Second surgery was radical neck dissection (sp) to find the site. Next was the removal of 14 teeth. (we made the decision to not let him take out all of them) So far it has been the right decision.
I finished radiation on Jan. 25th. (does anyone ever forget that day?)after 39 treatments.
I keep asking my husband if there really is a plan to all this. When I was first diagnosed I went to the internet and found very little information. Now I am finding so much. I think it was better that we just did what needed to be done and got on with the business of "getting on".
Sorry this is so long. I look forward to sharing and participating.
Dinah | | |
#13373 06-21-2002 06:06 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Welcome,Dinah! You have been through the mill and I am sure can provide great information for the members who are just beginning their journeys. You will also find very friendly people here.
Joanna | | | 
#13374 06-22-2002 03:19 AM | Joined: Mar 2002 Posts: 234 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Mar 2002 Posts: 234 | Welcome Dinah to our little, but getting bigger all the time group. I too had a radical neck dissection, part of my tongue removed and the bottom of my mouth rebuilt. Lucky me, there was no cancer in my lymph nodes; consequently no RAD or CHEMO. Any questions or problems you have please post and I assure you, you will always get some type of reply.
Take Care.
Anne.
Anne G.Younger
Life has never been better.
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#13375 06-22-2002 07:44 AM | Joined: Mar 2002 Posts: 188 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2002 Posts: 188 | Yes, welcome aboard Dinah! Look forward to "talking" with you in the weeks to come. SIncerely, Donna
SCC first time 1989, with a diagnoses of 'cancer in situ' removed lesion, no other treatments.
SCC recurrence 1997 of tongue and floor of the mouth. Stage III /IV Hemmiglossectomy (removed over 60% of tongue/ floor of the mouth), free flap, modified neck, RAD and Chemo(cisplatin, 5fu) simutainously.
Cancer free 6, yes, six, years!
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#13376 06-22-2002 01:58 PM | Joined: Mar 2002 Posts: 102 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2002 Posts: 102 | Hi Dinah, Welcome to the board. My husband was diagnosed with SSC of the tonsil with mets to the neck like you. He underwent radiation and finished July 21,2000. (No, I don't think you ever forget the day you finally finish) We go back for his two year check up at the end of July, he is doing great now. Some dry mouth, but not too bad as he had amifostine. Julie
Julie
Wife to Kelly
SSC tonsil Stage IV
July 2000
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