| | Joined: May 2010 Posts: 36 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2010 Posts: 36 | I wonder why the doc at the ccc, didnt recommend it. The way he talked about it, it was like no big deal.
Ill have to give him a shout next week.
Dave | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Don't know but I would call him.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2010 Posts: 224 | well an enlarged lymph node can be many different things. A biopsy is just a way to be safe and know everything that is going on! My docs didn't biopsy before my surgery, and they just removed 40 lymph nodes and then did the biopsy, but they had a pretty good idea just from my scans that it was cancerous!
25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | I prefer it that way actually - call me crazy but I believe in the primary is boss theory - if you cut a chunk out of it... Then any other cancer cells that may be there but are laying dormant - jump into action because the boss is now disabled. Hence the rapid spread at times. That's why when they mentioned e 3 mm node that had highlighted on the baseline scan for my radiation - I told them not to biopsy it - probably too small - and knowing it could be anything - not necessarily cancer - I said fry it anyway - so - they rewrote my radiation plan to include the right side. (my lesion and one cancerous node were originally on my left side) but this node with attitude was on my right. I just wanted it nuked.
No cutting - no waiting for results... Just cook it.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: May 2010 Posts: 36 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2010 Posts: 36 | Well to update, I talked with the doc at the ccc last week and somehow we got the enlarged node all wrong. The ultrasound was good. So I dont know where I went wrong in my hearing but anyways thats good. So went to my primary and talked about where to go from here since Im still having many issues.
She made an appt with me to see a physical therapist. I went today and she checked me out and said my neck was horrible, and that I probably have a pinced nerve causing my neck, ear, teeth pain. So I will keep an eye on everthing and continue with the therapist for work on my neck.
Thankyou everyone for your awesmome help
I will keep updating and checking on some of you
Dave
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Dave Im glad to hear you are ok. You are very fortunate that you do not have cancer. I know you have some issues but I would gladly trade with you any day! Hope you know how lucky you are!!!! Best wishes.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2010 Posts: 36 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2010 Posts: 36 | Thankyou Christine,
Yes I feel very fortunate, I will keep an eye on my tounge for sure. I seen what my wife went through and have heard many stories here from so many strong people.
Prayers for all from patients to caregivers
Dave | | |
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