| | Joined: Mar 2011 Posts: 7 Member | OP  Member
Joined: Mar 2011 Posts: 7 | HI Everyone,
I am pretty quiet on here, but I do read what you all write.
I am currently undergoing HBO treatments. I have been through 11 of them and have to do 30 total so they can remove a tooth. I had so many cavities and I had to also get 2 root canals that of course insurance does not cover.
But my eyes are a bit messes up, seeing blurry with my glasses, I am told it goes away a few weeks after you are done with the thearpy, I sure hope so.
Hope you are all doing as well as you can be!
Much love and peace
cindy
SCC Stage 2 - April 2002
Of Tongue, Tonsil, Lymph Node
Surgery, Radiation, Chemothearpy
Trismus
Trach Tube - Feb 2008
Difficulty Swallowing and really bad dry mouth
Married With 2 Fur Babies Simba & Shadow
Happy to be surviving!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Cindy, your eyes probably will get worse before they get better. It happened to me every time I did HBO. Good luck with the HBO!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Good lick some of the fall out from treatment sucks... But you are doing so well.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jan 2008 Posts: 29 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2008 Posts: 29 | Cindy - I hope your HBO treatments are going well. I did 30 dives in 2004 for a tooth extraction and did 60 dives in 2007.My eyesight in 2004 came back to normal after a few weeks but in 2007,one eye came back to normal and one didn't.I'm guessing it was because I had the maximum allowed that caused that.My oral surgery in 2007 was rather extensive but the HBO did help it heal completely.My biggest issue with HBO is death by boredom !!
32 Year Oral Cancer Survivor.CURED!!Right neck dissection.5000 rads plus radium needle implants in the tongue.Also had alternative treatment in Germany from Dr. Hans Neiper in 1982.The combination of ALL the treatments cured me.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | It is an unusual occurrence to have permanent damage done to your vision from HBO. As with any treatment there are always side effects and things that can go wrong. This is why you see it so often on the forum 'everybody is different'. I have done a total of 125 HBO dives. There is no such thing as a maximum limit of sessions. If my doc felt I would benefit from more I would be having more. In fact my ENT had mentioned doing a few more dives to help me heal, I wasnt interested in that option unless absolutely necessary. I am a big supporter of HBO, Ive seen first hand the healing benefits it helps with.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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