| Joined: May 2010 Posts: 36 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: May 2010 Posts: 36 | I just got home from mayo. The doctor there is not worried about the lump he says it does not feel like a cancerous tumor so he said to keep an eye on it. As far as the pain I am having, he wants to do an ultrasound on my neck and go from there. He thinks the ultrasound will be normal. He is thinking alot of the pain is neurological. So if all tests come back o.k, crossing fingers, will have to see a neurologist. Thanks everyone, will keep updating.
DAVE | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | Sometimes a lump is just a lump. While I know the relief you feel at the moment, and I am certainly not suggesting you get too intense about it - keep an eye on it yourself and if it changes get back to your doctor. In the meantime - celebrate!!! Glad to hear the good news. Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Agreed - good news is always a plus but do keep an eye on it!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2010 Posts: 224 | so you must live somewhat close to where i live if you went to mayo...i had my treatment done at u of m in minneapolis. I had a great doctor there. But I have since moved to fergus falls MN, which is 3.5 to 4 hours west of u of m on 94. Just wanted a change in scenery! I hope that it is just neurological.
But even if it is just what that ENT said, are they going to do anything about it? My dad had surgery for his TMJ. And if yours is so bad that it is causing facial swelling and what not, wouldn't you think they would do something about it? I sure hope so.
Nerve pain can be a big pain in the butt! Also, minds like to play some pretty nasty tricks too. Not saying that is what urs is doing, but since my treatments have ended, I get these pains after my scans show new "activity", and I hate my brain for doing that, lol.
Hope your ultrasound comes back with no issues!!
25/female at diagnosis Dx;stage 3 SCC tongue 03/25/2010 Surgery 04/13/2010 Trach,ng tube, peg feeding tube Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue. 30 rounds IMRT ended July 15,2010 | | | | Joined: May 2010 Posts: 36 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: May 2010 Posts: 36 | Hi Bethers, I live in wisc, a couple hours n.e of rochester. Rochester is an amazing place. Just dont want to be there. My wife had her surgery at the U. They are great people there too. If all comes back clear for cancer, I think they want to get a neurologist involved to figure out whats going on. I did have a severe back injury quite a few years ago, but the damage was in the lower back, but maybe I also did hurt my neck and now I am getting some nerve damage.
Thanks and best wishes
Dave | | | | Joined: May 2010 Posts: 36 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: May 2010 Posts: 36 | Thanks everyone so very much for your help and information. Ultrasound came back good, one enlarged node, but clear. Tounge pain is slowly gettting better, prescription for lidacaine. On to see the neuro next.
God Bless
Dave | | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2010 Posts: 224 | are they going to biopsy the enlarged node at all?
25/female at diagnosis Dx;stage 3 SCC tongue 03/25/2010 Surgery 04/13/2010 Trach,ng tube, peg feeding tube Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue. 30 rounds IMRT ended July 15,2010 | | | | Joined: May 2010 Posts: 36 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: May 2010 Posts: 36 | They said they didnt need too. Is that something they should?
Dave | | | | Joined: Mar 2011 Posts: 21 Member | Member Joined: Mar 2011 Posts: 21 | better safe then sorry. if it was me i wouldnt get the biopsey. we all know how that worked for me last time but if your comfortable not getting a biopsy then dont.
48 yo male smoker beer drinker biop dx 2/15/11 stg iv scc tongue teeth out 2/16/11 peg 2/21/11 pet 2/22/11 total glossectomy 4/11/11 18 nodes removed. 1 cancerous margins clear
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Yes... I would agree. An enlarged node is definitely something that would make me push for a biopsy. Best to be safe. Some people have been diagnosed, when a node showed cancer but they couldn't find a primary.
It won't hurt to be sure. Good luck
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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