| | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | I agreed do the biopsy - steroid creme will cut the inflammation and mask the symptoms possibly making it look better but that doesn't mean it is. A biopsy is the only way to know for sure. Good luck tomorrow -
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Apr 2011 Posts: 17 Member | | OP Member
Joined: Apr 2011 Posts: 17 | Thank you; Julieann
I have lots and lots of questions to ask you folks in the USA; in India the healthcare system is really pathetic and Doctors are not accountable even a bit; so literally you are left to diagnose yourself... after having spent a lot of time on good medical internet sites..sometimes I wonder how come I know more than these doctors (seriously not joking)...
The doctors out here just treat the symptoms and really don't find out the cause of the issue..
| | | | | Joined: Apr 2011 Posts: 17 Member | | OP Member
Joined: Apr 2011 Posts: 17 | Folks,
I just came back after having the biopsy; Man, it is too painful and can't talk or eat / swallow. It was a incisinial biopsy and the Lab said that results will come only on Tuesday 4/19
Can you folks tell me how I can try to get something into my stomach; it is very difficult to swallow and when I try to swallow I have shooting pain;
Last edited by Balakal; 04-14-2011 08:37 AM.
| | | | | Joined: Apr 2011 Posts: 17 Member | | OP Member
Joined: Apr 2011 Posts: 17 | Folks:
I found out today (2nd day after biopsy), that I have a white patch on lateral part of the tonuge (just before the place of biopsy); it was not there earlier before biopsy; can Leukoplakia develop so fast within 24 past. it seems to be a big white patch.. please help.. i am very nervious | | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Balakal - If you can get some kind of total nutritional drink that's what I'd recommend. Much easier to swallow a liquid and you'll be meeting all your needs with each serving. In the US the predominant brands available at the corner drugstore are Ensure and Boost, but there are even more highly caloric ones available online. I lived on that stuff for nearly a year.
David2
PS hang in there!
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | It's possible that the white patch is just healing tissue. Try to relax until tuesday you should get your results then, once you have them then you'll know what to do. If the white patch is still there when you go to get your results show the dr.
Good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Apr 2011 Posts: 17 Member | | OP Member
Joined: Apr 2011 Posts: 17 | Thanks; folks; went to an ENT today; my oral surgeon is out of town and the ENT just pulled the white patch out.. You cannot imagine this; it was a piece of cotton which was so firmly stuck in the underside of the tongue; you now know how pathetic the healthcare systems here are... I am very very very scared and nervous till the biopsy report come out; i cannot concentrate on anything else; doctor prescribed me valium for the next 2 days; even though I had it i can't sleep  I am praying and praying; i m very much worried for my wife and son; i don't know how i am going to survive if i am diagnosed with C.. meaning no financial support
Last edited by Balakal; 04-16-2011 02:35 AM.
| | | | | Joined: Apr 2011 Posts: 17 Member | | OP Member
Joined: Apr 2011 Posts: 17 | All kind hearted members:
Thank you for your prayers; I think it really worked;
The Histopath Lab just called me and read out the report.. Here it is
""Ulceration with Chronic inflammatory reaction of tongue. Features compatible with Chronic traumatic injury""
At least for me this does not look to be "C"... can you folks please tell me if All is Well?
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | You are fine!!!!
Congrats!!!!! You are very fortunate that you do not need our help.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Great news! Sounds as if you're in the clear. Whew!
d2
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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