| Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | Thoughts and prayers coming your way!
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | Liza: My heartfelt prayers are with you now and will stay with you during your treatment and afterwards. Know that we all love and care for you. julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: Jan 2011 Posts: 63 "OCF Down Under" Supporting Member (50+ posts) | "OCF Down Under" Supporting Member (50+ posts) Joined: Jan 2011 Posts: 63 | Thank you guys for your love, support and prayers. I am absolutely terrified and never imagined how vicious this cancer is. My while world has,been turned upside down. Trying to remain hopeful in the face of bad odds is the hardest thing I have had to do. But my focus, is, on my son who is 12 and I cannot bear the thought of, him being without a mother. All I can pay for is a miracle, as my doctors are not offering me any great odds even with treatment. Please continue to pray for me....i need this more than ever. Love and hugs xx
SCC of the Buccal Mucosa (R cheek)- T1N0M0.10 hour Surgery on 27/9/10 involving resection with freeflap from radial forearm..clear margins. Neck dissection..negative nodes.Trachy, NGT, no rad or chemo needed at the time. Neck lump positive for SCC..again! MND 14/2/11. Waiting to have chemo and rads
| | | | Joined: May 2007 Posts: 132 "OCF Down Under" Senior Member (100+ posts) | "OCF Down Under" Senior Member (100+ posts) Joined: May 2007 Posts: 132 | Dear Liza,
I saw on Facebook that you were in hospital but had no idea that your situation had changed so dramatically. You are such a lovely, caring person. When I first got OC I was told I was pretty much hit by a sniper's bullet - that there was no rhyme or reason for it (apart perhaps for genetics). The more I see people like yourself suffer horrendously with this disease the more random it appears.
My prayers and thoughts are with you and I hope that the chemotherapy is able to work some magic so that you can proceed with the radiation.
I am still reeling at this news.
Love to you and your family.
Sue G
55 y/o SCC LL Tongue 3/27/07 Part. mandibulectomy 9/2/07 Left ND 5/12/08 RT/Chemo Rec LL Tongue 07/09 Part gloss 8/5 & 8/25 Surg 10/28/09 re mets to R neck & L jaw RT & Chemo finished 12/22/09 PEG fitted 05/06/10 L buccal SCC 10/10 freeflap (forearm)surgery 2/28/11 L buccal and gingiva
| | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2011 Posts: 571 | Liza, my sweet friend, gather strength from all the love that is flowing in through thoughts and prayers! Prayers are being sent from friends and friends of friends. I pray for St. Jude and the Blessed Virgin Mary to intercede on your behalf and enable the chemotherapy to eliminate all the tumors and restore you to health. I will keep sending prayers. Love you! xoxoxox <3
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
| | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Liza, I haven't been on ocf for a little bit so missed Christine's post on your behalf. My prayers and thoughts are with you. Never, ever give up. Sending love from NSW xxx
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 | Well Liza and I have been in contact via Facebook Yesterday- she told me that it is in her glands, skin and muscle. She's still in the hospital. - she's had chemo, not feeling great, and of course scared. I'm sure she will check in again soon. But my prayers are with her and I have told her and would like to reiterate again here. She can do this... Odds and percentages are just a number. It doesn't mean they will be her outcome. She's strong, and can and will beat this.
Much love and many prayers to you Liza... Miracles are people who've heard the odds but decided not to believe.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: Dec 2003 Posts: 528 | Dear Liza, I think of you every day and send you love and positive energy. I know I am one of many around the world who are wishing you well. Lots of love from Helen
RHTonsil SCC Stage IV tx completed May 03
| | | | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2004 Posts: 316 | Dear Liza, It was great to have those chats on the phone and I'm sorry that I didn't get to visit when I was in Perth last week. I hope you're feeling somewhat better, you're such a positive person. I also hope that all the construction going on around the hospital isn't too noisy:-)! (For those who don't know, the hospital is being re-built and will be named after Professor Fiona Stanley, the world's burns expert). Will give you a call soon.
Love, Merrie Brooks
End of Radiation - the "Ides of March" 2004 :-)
| | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Dec 2010 Posts: 291 | Dear Liza, My sister-in-law, the quilter, made me a quilt while I was in treatment, using a "Hope" theme, the word "hope repeated throughout, some lovely colors. I look at it and see hope that never ends. All of us can retain hope for something, no matter what. Liza, I've been thinking and praying about you. I hope the chemo stops the cancer in its tracks. I have heard of people with seemingly hopeless cancers who have have experienced an improvement after experimental treatment. I hope for you the best, too. Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA GIST tumor sarcoma, removed 9/2011, no chemo needed Clear on both counts as of Fall, 2021
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