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#131903 03-23-2011 06:32 PM
Joined: Nov 2009
Posts: 493
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Platinum Member (300+ posts)

Joined: Nov 2009
Posts: 493
OK. I don't know if I've seen this addressed before, but I am actually doing quite well, but occasionally when I have been outside in the cold air, the inside of my mouth gets really strange, and I find it difficult to talk. The feeling goes away after I drink some water or rinse out my mouth but it's a weird feeling, and sort of embarrassing. Has anyone else had this problem?


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #131905 03-23-2011 06:44 PM
Joined: Apr 2006
Posts: 583
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Sounds like Dry mouth to me!! grin

Try some Oral Balance by Biotene. It is a Gel that will help give you moisture.

Take care.. Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
DM32ASA #131929 03-24-2011 05:06 AM
Joined: Sep 2006
Posts: 8,311
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Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Or try the Biotene gum. Available the cheapest at Wal Mart in the phar dept.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

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