| Joined: Mar 2011 Posts: 22 Member | OP Member Joined: Mar 2011 Posts: 22 | Hi everyone,
I just received my result for my biopsy and MRI scan. Though my biopsy shows that my ulcer is non cancerous (2 biopsy report: 1 shows severe dysplasia and another inflammation) but my MRI scan reveal that there is something penetrating my tongue. The doctor advise me to go for surgery to remove the ulcer and will further examine it for cancer. I am wondering normally for this kind of surgery, what is the success rate? and is it a complicated surgery? What other options are there besides surgery?
Thnks.
joucads
DX: T1N0 Tongue Cancer 23/3/2011 Partial Glossectomy 30/3/2011 Clear margins. | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | I think that depends on how much they are planning to take out - if its a small area the tongue heals quickly so it shouldn't be too bad - if it's a partial or hemiglossectomy - with a rebuilt area - it's a pretty big surgery - mine was 10 hrs - but they also did a neck dissection - you need to ask them more questions - find out what they are planning to do - I'm glad the are offering you surgery - i had 2 negative biopsies - before a 3rd diagnosed me - better to be pro active than reactive. I'm 4.5 weeks out of surgery and doing well. Best of luck and let us know what is going on.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Your doctor should be able to answer your questions about the success rate. I would think it depends on many things including the individual along with the skill of the surgeon. A second opinion with another surgeon wouldnt hurt. Surgery is the only option for something like this, or watchful waiting. You wouldnt go thru radiation for something other than cancer. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I would think that if a biopsy showed no cancer, then I would tend to listen to it and get a 2nd opinion.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Mar 2011 Posts: 22 Member | OP Member Joined: Mar 2011 Posts: 22 | Hi,
Have done the surgery. Recuperating at home. Initial finding is chronic inflammation. Will wait for 1 week to get the final result.
joucads
DX: T1N0 Tongue Cancer 23/3/2011 Partial Glossectomy 30/3/2011 Clear margins. | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | Very happy to hear they have done the surgery and will have the actual tumour to find out what is going on. Praying for clean results.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Me too - glad the initial results are positive, and you are recovering - I do need to say - I had two negative biopsies before my last positive one...even if it is negative for cancer keep a very close eye on it and if it does not heal or recurs get someone to look at it right away - best of luck!
Last edited by Cheryld; 03-17-2011 09:38 AM.
| | | | Joined: Dec 2010 Posts: 62 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Dec 2010 Posts: 62 | Did they remove all the severe dysplasia along with the ulcer? My first excision after biopsy was to remove carcinoma in situ but they didn't get all the severe dysplasia so I had to go back in a few months later for a more extensive excision (partial glossectomy but not neck dissection as PET scan was clear).
Glad the initial results look promising but as everyone else has said- keep an eye on it! Good luck!!
Catherine, SCC floor of mouth DX 2010,unclear margins, PET scan clear, no chemo or rad,biopsy in 9/2010, 2nd excision 10/2010 didn't get all carcinoma in situ; partial gloss & excis. right floor 2/2/2011 margins clear. Part.gloss-10/5/2011 sev dys clean marg. HPV neg. Don't smoke or drink. SCC floor of mouth left side 4/2016. Dysp excis. rt palate 7/2017 Part gloss sev dys lat marg 2/2019 Part gloss free flap rt neck disc 5/2020 Part gloss bilat neck disc 7/2020 33 rad 3 cis.
| | | | Joined: Mar 2011 Posts: 22 Member | OP Member Joined: Mar 2011 Posts: 22 | Hi,
I got the final result. The result shows that I have a 2mm cancer in the tongue. But the doctor is unable to find out the exact location of the cancer. I am puzzle, Is it possible not to know where the cancer is? I am to do another surgery to get a wider margin and shave more of the tongue for further testing. If more cancer is found, then radiation is needed.
Emotionally, I am drained and a blank. Since I was told that it is inflammation so my expectation is that I would be cleared. Yet, the report prove otherwise. It has been a blow that is totally unexpected.
joucads
DX: T1N0 Tongue Cancer 23/3/2011 Partial Glossectomy 30/3/2011 Clear margins. | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | I know exactly how you feel. - my past few days have been brutal. Its ball in another post so I won't go into it. If it came back scc then I am assuming they are thinking there's more there but not in the form of a visible tumor. Have they looked at your neck.. ? It's a very small tumor but I would have them check your neck and keep an eye out for swollen lumps in your neck. Get to know-how your neck feels - what's normal and what's not for you. Rads is not fun but likely insurance.
Best of luck! You are being seen at a cancer center right?
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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