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Joined: Sep 2006
Posts: 8,311
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Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Great Gabe!!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
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Joined: May 2002
Posts: 2,152
Great News Gabe! Go out an celebrate.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Joined: Mar 2008
Posts: 404
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"OCF Down Under"
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Posts: 404
Likes: 2
Wonderful news Gabe.

Karen xx


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
Joined: Sep 2010
Posts: 179
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Senior Member (100+ posts)

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Posts: 179
Hi Gabe,

I have not been on here for a while. I'm so glad it's not Cancer.Yay,,,

Minh


35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
Joined: Sep 2010
Posts: 24
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Posts: 24
I also had a scare with my 4 month check. On my MRI it was found that I had a polup on my cheek and nasil cavity and on thyroid I had many nodules, some large ..I had a ultra sound a few days ago and dr. thought they were both beneign Throid he thought might be gouders? - It was a tough scare! -- Still having a pins and needle feeling on tongue - very strong a times. Doc said it is nerve endings and a good sign. I still struggle with solid food. It takes so long to accomplish dchewing enough and getting it to the back of my throat to swallow. I have some taste but it takes so long that I give up
and make a shake. How long does this go on ...will I ever really enjoy food again. Will I ever be able to enjoy going out to dinner ever again? I would like to hear from people from 6 months to a year what to expect!!


54 Year Old Female Non Smoker - Non Drinker
Stage 3 Squamous Carcenoma middle tongue, Surgery 9/3/2010 15 hour operation, Neck distention,right - 19 lymph node removed/ok -some tongue dysplasia - free flap/forearm, left arm, skin graph-thigh, lip split/jaw 1 tooth removed/PEG
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