| | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | OP  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | It's P day - I get my path results - it's been 3.5 weeks since my surgery and I am doing well. I left on vacation on the 21st, and at that time I had an appointment already set up with my SO and my RO for this week. SO today RO Friday - the friday I left they hadn't gotten my pathology back. I had considered calling mid week last week but I figured everything will already have been set in motion with regards to whether i will be having radiation or not. Knowing would not really make a difference since I was due to see both specialists this week and will likely start radiation soon after if it's required. Sooo today is the day. Despite the fact that my CT and MRI were clear in January I know there is a possibility that something may have been found in my nodes... So I'm just asking for a few best wishes and fingers and toes crossed, that whatever news I get won't be too detrimental ... take care all of you - I know I have said it before but you all are amazing and inspiring people. Hugs Cheryl !
Last edited by Cheryld; 03-02-2011 10:06 AM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Nov 2010 Posts: 167 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2010 Posts: 167 | Fingers and toes crossed! Sending you positive thoughts for negative results!!!
Jennifer (39)
02/10 SCCa Tongue & Base, HPV-
03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out
Back at work and feeling good 03/24/11!
12/20/11 - 9 month f/u PET/CT - all clear!
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | OP "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Thanks so much - I hope you are doing well also - congrats on finishing treatment ! Sitting in the waiting room now... Hearing the jeopardy music.... In my head.... Have a great day.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Dec 2010 Posts: 24 Member | | Member
Joined: Dec 2010 Posts: 24 | Thoughts are with you Cheryl, wishing the best result for you.
2001 age 30 SCC on LS Tongue, non smoker, casual drinker. Partial glossectomy
2002-2006 yearly Lichen Planus, 8 surgeries, PDT for 6 mths
2007 1/4 glossectomy, neck dissection, radial forearm flap, 18 nodes removed, trach
2009 erythroplakia gums, 3x cut
2011 SCC gums,recovering surgery Feb
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | OP "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Just found out - there was 1 node involved - he said one of the things they look for is if the cancer was encapsulated inside the node - or if there was a little outside - apparently there was a little outside this is what made my dr decide to recommend radiation and chemo -- that and the perineural involvement that I knew about from the outset. Both the SO and RO said I am in a gray area - but because I am young and healthy they want to treat this aggressively - my dr. Also says that at this point he believes I am cured - the radiation and chemo are insurance.- and I am ok with that - they were also talking about a clinical trial... Interesting. So I'm due to start in a few weeks. Not bad news - not good news - pretty much what I expected - for which I am grateful. Thanks all of you for your kindness.
Last edited by Cheryld; 03-02-2011 02:27 PM.
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | Positive thoughts and best wishes, always.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2010 Posts: 201 | Hey Cheryl. Not the greatest news but I am very happy to hear that your drs want to be aggressive. After all this is an aggressive cancer.
Yes radiation will be tough but many have walked that path and came out ok. You got through the first half now to finish. Dont be afraid to ask any questions. There are probably so many you want to ask.
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
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