Nah, it's just that we like typing!

d2

Hi Dave, I've been a carer to my hubby who was diagnosed 2 years ago. He has just had a clear CT & PET scan, something that wasn't expected. Hopefully he'll be around for a long time to come. You are really brave, and your mum sounds like a godsend. I am in Melbourne...yep, another Aussie, but with many friends via FB on the other side of the world. Don't know what I would do without the support on this site, and FB - most of my friends on FB are from OCF, and are all loves of my life. To you and @KLO, how do we find you on FB?

Hope you are still doing ok, lots of love being sent your way.

Jeanna

If anyone wants to join the OCF facebook list. Please write a message on that thread found under the "Friends" tab. Include both your name on here and your real name. If you have a link to make it easier to find you, please add that too and I will update the list. Only upon request will I add anyone to this list. It is very nice to be able to get to know OCF members in other ways than just as oral cancer patients and their caregivers. This site is still the very best place for all info about oral cancer. Facebook in no way takes the place of this forum.

Thanks Christine..agreed, but FB is a good place for a laugh, hug & kiss.....don't you think?

Have you had biopsies to either confirm or deny the Cancer. I might have missed that part?

hey
sorry i've been busy and not made it here to reply the past few days.
@ David2- well i can touch type reasonably well. it's no more outrageous than the name as a cause haha

@ Jeanna F- Congratulations on the clear scan for your partner. must have been a great moment for you guys ! i'm doing very well at the moment, thanks

@ChristineB- i'll have a look for that list to add my name for the fb

@ EzJim- i'm not 100% sure on what you mean. do you mean biopsies of the glands taken during surgery? if so, yes they were checked as far as i know and i think only about 3 were cancerous, and a heap were taken around them that were ok.. i've had a biopsy on a neck node on my right during treatment which was cancer.. but have since been given a clear scan from an ultrasound. nothing unusual showed up which my radiation doctor expected, which is a good sign. i'm booked for a PET to be doubly sure in the month of May i think.
hope this helps,
i've gotta go again now, to the gym actually. wish me luck haha
cheers,
dave

@

Welcome, Dave!
I think you'll-as I have and continue to-find not only a wealth of really useful info but really GREAT PEOPLE on this site. You've been through a lot, my friend and it shames me when I come here and read people's experiences to think that I actually occasionally feel sorry for myself!
Hang in there, dude! We're all rooting for ya!
Gordon

hey can i ask you a question... how many nodes did you have involved on your left and right side?

@gpk. cheers mate !

@Cheryld
hey Cheryld.
left side i think it was 3, which were taken in the surgery. 1-2 weeks into treatment i discovered a lump on my right side, and had higher doses of radiation on that part of my neck to 'kill' that cancer.
hope that helps,
cheers

It does... Thanks I had one on my left and that and 39 more were taken, in surgery but a very small node 3mm highlighted on my right in my last CT - they are adding radiation to that side just to be sure they get it they are not sure it's cancerous said it could be any number of things as they haven't done a biopsy. I am going to ask them about making sure it's strong enough. Thanks so much - hope all is well.