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#130557 03-01-2011 10:43 PM
Joined: Feb 2011
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Gianna Offline OP
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Hubby begins RT on Monday and Chemo on tuesday.
Checklist
Audio test - Check
PET SCAN - Check
Blood Tests - Check
MRI - Scheduled
Feeding tube installed today
Chest Xray - check
Dentist Check up and additional floride (need to pick up floride.)
EKG - Check

We are having the dress rehearsal for the RT on Friday, RT to begin on Monday and Chemo all day on Tuesday.

Wife of Brian - tonsil cancer.


Spouse of Brian
Brian diagnosed with SCC Feb 8th, 2011
Cisplatin 2X , 35 RT,
3 cm tumor in mouth, swelling in node
HPV Positive, Non Smoker, moderate drinker, Age 52
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Excellent check list! Now I hope your husband is enjoying all his favorite foods and then having seconds! Its a good idea to bulk up a little since treatments usually end up with the patient losing weight. Also his sense of taste will change, it will return but for a while things wont taste like they should. Best of luck with everything! We are here for any questions.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Are you talking about Fluoride trays?

Make sure TSH is included in the blood work. I would ask for that in all future blood taken and keep those reports.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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TSH? What, pray tell, is that?

Love the check list - looks like mine and it all starts Friday - then prep work. Scary but glad to be moving forward - doing nothing makes me nervous.

Best of luck!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Thyroid-stimulating Hormone. David's suggestion is a good one that I wish I'd known about before I started RT. Even with all the excellent IMRT most of us are getting, the thyroid still gets blasted apparently, mine included.

You can read more here:

http://en.wikipedia.org/wiki/Thyroid-stimulating_hormone

The rest of that list looks great! I'm assuming you just left off all the little things - liquid nutrition, neck creams, mouthwashes, etc., etc. To say nothing of preparing for possible pain/nausea relief. Sure your docs have spoken to you about all this; we're also all here to help.

d2

PS


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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I just read a scad of pamphlets - they have baking soda mouthwash recipes - yada yada yada - I will def remember to ask about the TSH and flouride trays which someone else mentioned.

You guys are an amazing source of info.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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My canned story on TSH and why you need to have a blood test before TX to establish what is normal for YOU.
[quote]While my CCC doctors were top notch on Cancer, for related issues like Thyroid - "not so much". I was not only extremely tired but also froze for two years, even in summer, and kept a winter coat on in air conditioned places yet I was constantly told: "Your TSH levels are normal" and I did not ask for the actual numbers or test results. Turns out however there is controversy over what is the right TSH level with labs having a 5.5 or a 4.5 as okay even though endocrinologists who went to Medical school the 21st Century consider 3.0 as the highest acceptable level. Before TX, I had a TSH of 1.6 and after TX it shot up to 4.3. Now that I am "on the pill", I am finally warm again. Plus my energy is back and my TSH is back to 1.48
[/quote]
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Will definitely ask then - perhaps I'll go through my family dr.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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