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Joined: Jun 2010
Posts: 153
Stily1 Offline OP
"OCF Canuck, across the pond"
Senior Member (100+ posts)
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"OCF Canuck, across the pond"
Senior Member (100+ posts)

Joined: Jun 2010
Posts: 153
Hi,

I'm ten-months out from my radiation/Cisplatin treatment and generally doing pretty well. However, I do seem to have the morning runs most days, and I worry that this could somehow be related to my treatment.

Or maybe it's English food. Or coffee. Or my vitamins. Or just getting older.

Any one out there in a similar situation?


47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
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Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Never had a similar problem and I do have a cup of Cuban coffee in the am and I am getting older so out of your list maybe you can focus on the English food and vitamins as I don't do either.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
I had the same problem and it turned out to be the vitamins I was taking. I tried stopping each one individually to see if it was any particular vitamin and it wasn't until I stopped everything except the Centrum that the problem went away and within 24 hours. At the time, I was taking vit C, Vit B50 complex, Vit E and a Zinc supplement. There have been no repercussions from stopping them other than my nails are not quite as nice. Guess my body was trying to tell me I didn't need them.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I

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