| Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | OP "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | I had my 6th month check up today at my hospitals cancer clinic. I know I have issues with either inflammation and or granulation, ulceration,Leukoplakia,??? and have had a biopsy scheduled for the 7th of March for some time now with my oral surgeon. This is on the front between the tongue and flap. The scare was when the (new to me doctor but said was an assistant to the H&N surgeon) looked down the back of my throat and said she could see a white patch. She sprayed the area to numb it and 10 minutes later the H&N surgeon came to have a look with her. He prodded and poked and said it was something in the crypt on or near tonsils. Did not catch it all but think he mention debris and a little bit of something did fall out. Have since goggled and in case it happens to someone else though I would post it. Here is just a little bit of what I think was the problem . �The tonsils are two glands found at the back of the throat. They are part of our immune system, making antibodies and white blood cells which help protect us from infection. Tonsil stones (also known as tonsilloliths) are a common condition characterised by small, hard, foul smelling, yellow stones located within the deep crypts of the tonsils. Food particles, bacteria, oral debris and white blood cells become trapped in the crypts, hardening & calcifying over time.�No one has mentioned a bad smell to me so hope I did not have that  Now for the biopsy in a couple of weeks..will let you know. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hi Gabe. I am very sorry that you are having a problem. Ive never heard of what you described. Hope all this turns out to be nothing. Best of luck with all your tests. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2010 Posts: 37 "OCF Canuck" Contributing Member (25+ posts) | "OCF Canuck" Contributing Member (25+ posts) Joined: May 2010 Posts: 37 | Sorry to hear Gabe! I am sure everything will turn out ok! I shall send some extra prayer's up. I will be thinking of you also. Many Hugg's Roz
Stage 1V scc of toncil 12/1/09 Peg in 01/18/10 35 rads 3 cisplatin tx ended 03/02/10 | | | | Joined: Aug 2010 Posts: 157 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Aug 2010 Posts: 157 | Its nothing gabe I am sure, I had reeeeeeeeaaaaaalll bad tonsilitis at the beginning of the journey and was totally unrelated to everything going on. I will keep you in my thoughts, I should be starting work that week and will be looking for updates everyday! Good Luck
Your Friend, Nate
SCC left lateral tongue, left neck dissection. 2 nodes positive. 3 All Clear then ITS BACK 8/23/11 Shows 1cm in tongue in CT SCAN, Radial Free Arm Flap with Radical Neck Dissection 9/20/11 , All Nodes Negative, But Tongue Tumor Poorly Differentiated. Awaiting next step in treatment on 10/5/11... RIP Nate 7/28/12
| | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Best of luck with your upcoming appointment Gabe. I'll have everything crossed for a good outcome. Steve has his 3 monthly appointment on the 3/3 so I'm with you next week on the whole nervous, stressed out front. Take care Gabe and keep us all posted on how things go xx
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
| | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Mar 2008 Posts: 404 Likes: 2 | Gabrielle,
Best wishes with your next appointment in March. Hope everything goes well.
Take care
Karen
46 yrs: Apr 07-SCC 80% entire tongue removed,T4N1M0 Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs 30 x rad,6 x Cisplatin, 30 x HBO Apr'08- flap Recon + ORN Mandibulectomy (hip bone to reconstruct jaw) Oct'08 1 Plate out-jaw Mar'09 Debulk flap Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | Will be thinking of you. Oh how I know that this waiting and worrying can take over your life and then once you get the "all clear" how you kick your own butt because you wasted all that time worrying! No need to repeat my mistakes!! Sometimes a lump is just a lump!
Try to put this to the back of your mind - you have done all you can. In the meantime, try to do something special for yourself each day. Do NOT let cancer steal these days...
Hugs
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | OP "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Thank you all for your concern. The scare was resolved in 30 minutes once the white spot (debris) at the back of my throat\tonsil was removed. The biopsy on the 7th March is just a part of the �keeping an eye on the leukoplakia\inflammation� (front of tongue\flap) that I have had since the original operation. I have had a few surgeries to nibble away at it with not much success so as I am in no pain opted for the biopsy just to put my mind at rest. I had a biopsy in 2009 and am expecting much the same result i.e no cancer but probably a few nasties like these pasted from last report �The adjacent epithelium is hyperplastic, shows prominent parakeratosis with bacterial colonies and abundant candida albicans organisms being noted in the superficial epithelial layers. There is no evidence of residual tumour.- DIAGNOSIS TONGUE : NON-SPECIFIC CHRONIC ULCER.CANDIDIASIS.� Sounds awful doesn�t it but the comment from the specialist is mostly - not much to worry about! The only thing I had forgotten about was booking a yearly luncheon for myself and 3 of my female colleagues for the following day. It coincides with International Women�s Day and at the time marked no special dietary requirements. As I will no doubt have a few stitches I have changed it today.  Love to all Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | So glad to hear that it is not OC!!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | OP "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | I will know after next weeks (7th March) biopsy result is in but am trying not to worry too much!
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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