| | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | That is so wonderful that some OCF members are attending the San Antonio walk!! You can always exchange cell numbers as well if you can't find each other.
This is going to be just wonderful!
I hope OCF can be represented at all the walks, so please check the website for a walk near you or email me and I will let you know!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Yes, good idea. And yes, Suess57 is registered. I've almost come in contact with a handful of other survivors as well that don';t know of the forum, I've invited them to join but not sure if they have yet. Feel free to call me, the number is on the walk webpage.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Ok, great!!
Only a week to go!!
Christine is a featured speaker, so I hope anyone who lives in the area, please come out and support Elizabeth's hard work!
Thank you!!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | To any OCF members wondering about the San Antonio walk. It was EXCELLENT!!!! Elizabeth worked her butt off to make this a huge success. She had awesome raffle prizes, tons of food and drinks. She thought of every tiny detail. She even had special SURVIVOR tshirts for the survivors who came. There were over 250 people attending, which is huge for a first ear walk. Elizabeths speech was very moving, telling the sad tale of a young mother going thru such a hard time. I can proudly say my little tiny friend Elizabeth is one huge hero and inspiration!!!! Elizabeth....THANK YOU!!!! I appreciate you giving me the chance to be a part of your walk. It really was a pleasure meeting you, your family and friends today.  PS....I met Charm and his wife today too, guess what??? He REALLY is a very charming man!!! His wife is a wonderful person, I knew she would be! She was his caregiver, arent they all angels? I also met Ray and his lovely wife as well. They are both very nice people too! Of course they would be, Texans are very gracious people!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | Christine, thanks for the update on the walk! That is a fantastic turnout for the first year, and I�m glad to hear there were a few OCF members there. I�m glad you were able to be a part of it.
And a big THANK YOU to Elizabeth for organizing the walk and helping to bring about more oral cancer awareness. I watched your TV interviews and you did a great job.
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | How wonderful, Christine. I know it would be great, thanks to Elizabeth, and you getting to actually meet some of the other "CHARMing" survivors must feel amazing. You can tell us all about it when you return. 250 PEOPLE - You all did good! I'm determined to make it to one of the walks - wait and see  Julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | How great to hear about the San Antonio walk and how well it went. I sure wish I could have been there to meet everyone. This just makes me look forward even more to the Chattanooga walk coming up! Thanks so much for the wonderful update, Christine!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | So happy for Elizabeth!!! She did work so hard on this and I knew it would be just great!!!
Thank you Christine for taking part, I know you did awesome!!!
So glad you could meet other OCF members as well!! That is such a wonderful part of these walks, meeting OCF members in person!!
I had the awesome pleasure of finally meeting Jeanna Richelson and Nicki Raines in person this past weekend (organizers of the Chattanooga and Nashville Walks). They are wonderful, devoted people to the cause of oral cancer awareness. I am so honored to know them and everyone I have met thru this foundation. As I have said many times, my brothers memory and you all are the reason I do what I do. I have never met more courageous people in my life.
If anyone is interested in attending, please do!! It means so much!!!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Elizabeth's speech brought the crowd to tears. It was so moving. Christine kept the crowd's waterworks flowing with her story. All I heard from everyone was what amazing Women they were. Plus Elizabeth raised thousands and thousands of dollars for OCF ( 12? 15? - chemo brain). It was a privilege to be there. New York is going to have a very very tough act to follow.
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Thanks charm, it was an honor having you, christine, ray in texas and all the other survivors there with me! I'm working on finishing up my fundraising but have faith that I will be at $20K by the 15th--I hope!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
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