| Joined: Aug 2010 Posts: 72 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2010 Posts: 72 | Tim had a swallow test last week and there was good news and bad news. The good news is that his epiglottis is moving some, although not closing properly. The bad news is that his esophagus is only allowing tiny drops down at a time.
I did a search here on dilatation and it seems that it�s more than a simple morning in outpatient surgery. Is this still the case? Does it require a general anesthesia? Will it keep him from teaching? He�s back in the classroom finally and, after 8 months of no eating, drinking or lecturing, he would rather keep lecturing.
Susan, CG to husband, diagnosed April 2010, age 56, non-smoker, no HPV Mandibulectomy on left side May 2010 followed by 30 radiation, 3 cisplatin treatments. | | | | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 583 | I just had another Dilation done. It is very easy procedure. In and out in one day. Yes, it does mean general anesthesia so he will need someone can drive him home. The procedure it self usually takes about 20 min. the rest of the time is recovery. It is well worth it and it can be done more than once.
Get it done it helps so much!!
Take care.. Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | | | Joined: Sep 2009 Posts: 96 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Sep 2009 Posts: 96 | I have had three dilations done and will have more done. The reason they usually schedule more than one is that the scar tissue is tight and likes to bounce back so after one dilation it will usually close up a little. VERY easy and pretty painless. I had a little bit of a sore throat for a couple days afterwards but that was all. In and out the same day as stated above.
31 at dx 9/06 SCC T4N0M0 with bone invasion upper maxillary Surgery 10/06 CT's clear for 2 years 2nd recurrence - Laser surgery 1/09 dx Tumor board - No surgery to invasive for QOL 35 IMRT 3/30/09 Completed 5/15/09 8 tx Erbitux 3/24/09 Completed 5/6/09 HBO for ORN March & April 2010 Fibula flap 5/10
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Ditto all the above. I've had at least half a dozen. You go to sleep, you wake up 20 minutes later, your throat is sore for a few days. But it really helps, so don't be afraid of it!
d2
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Aug 2010 Posts: 72 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2010 Posts: 72 | Tim went in today for the dilatation. It's a procedure to widen the esophagus. His esophagus was closed up due to radiation treatments. Not even water could go down, hence, his months of aspiration pneumonia caused by spit going into his lung (a common cause of death with head and neck cancer). During the procedure a tiny wire with a balloon is put down the throat into the stomach. The balloon is filled and the esophagus is cracked open. It was successful! There is another side to aspiration. Tim cannot swallow. Hasn�t since surgery nine months ago - pre radiation and chemo. Tomorrow he starts VitalStim therapy. VS involves applying an electrical pulse to the throat muscles. The jolts of electricity remind the muscles how to work. If this works as well as the dilatation did, then Tim may actually be able to start swallowing and eventually eating. VS takes weeks of treatments until the muscles are strong enough for eating, but if it won't work it only takes a few sessions to realize this. The procedure was outpatient. Tim was given a general anesthetic. He coughs and chokes on his spit so much that he doesn't sleep well, but now he's sleeping off the drugs and breathing easily. He coughed up wads of bloody loogie after the procedure, and I was told that huge clumps of mucus were suctioned out during. This is the first time in months that he's slept for over an hour straight! I hope that's a sign that some spit is actually going into his stomach. Tim isn't recovering from cancer; he's recovering from cancer treatments. Please, pray that the VS works.
Susan, CG to husband, diagnosed April 2010, age 56, non-smoker, no HPV Mandibulectomy on left side May 2010 followed by 30 radiation, 3 cisplatin treatments. | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I get those done every 3 to 6 months and had one a few weeks ago. You are put out for a total of maybe an hour to an hour and a half. Not much to it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Aug 2010 Posts: 72 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2010 Posts: 72 | AAArrrggg! Please, don�t tell me that this is a 3 to 6 month thing FOREEVER
Susan, CG to husband, diagnosed April 2010, age 56, non-smoker, no HPV Mandibulectomy on left side May 2010 followed by 30 radiation, 3 cisplatin treatments. | | | | Joined: Sep 2009 Posts: 96 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Sep 2009 Posts: 96 | I don't believe it will be an every 3 - 6 month thing. Part of it is how well your body reacts to the dilations. Usually you will have to have several as your body closes it back up a little due to the elasticity of the throat. After a several it shouldn't want to close up. I will be putting you in my prayers that the VS works and he is able to swallow again.
31 at dx 9/06 SCC T4N0M0 with bone invasion upper maxillary Surgery 10/06 CT's clear for 2 years 2nd recurrence - Laser surgery 1/09 dx Tumor board - No surgery to invasive for QOL 35 IMRT 3/30/09 Completed 5/15/09 8 tx Erbitux 3/24/09 Completed 5/6/09 HBO for ORN March & April 2010 Fibula flap 5/10
| | | | Joined: Jun 2009 Posts: 71 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jun 2009 Posts: 71 | The dilatation's are more frequent in the beginning (first six months) and then taper off. You may end up only needing it one time per year. It really just depends on how your body reacts to each procedure. Your doc should be able to tell you how stable the opening is from one procedure to the next. Based on the stability you make the plan. Best of luck we are all very hopeful for you.
11/1999 SCC tongue - surgery 1/2000 Met(s) in lymph nodes - modRND 2/2000-4/2000 RT ~6 weeks end of 2006 SCC tongue - surgery 1/2008 SCC BOT - surgery / PEG installed 2/2008 chemo & RT 4/2008 last time I consumed solid food by mouth
| | | | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2002 Posts: 642 | FYI, I had 2 or 3 dilations following treatment several years ago. However in the last 7 years or so, I have not had to return for any further dilations, so please know that not everyone must have them perpetually.
Best of luck.
Stage IV Base of Tongue SCC Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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