Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#127944 01-16-2011 07:13 PM
Joined: Aug 2010
Posts: 72
slash Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Aug 2010
Posts: 72
Tim had a swallow test last week and there was good news and bad news. The good news is that his epiglottis is moving some, although not closing properly. The bad news is that his esophagus is only allowing tiny drops down at a time.

I did a search here on dilatation and it seems that it�s more than a simple morning in outpatient surgery. Is this still the case? Does it require a general anesthesia? Will it keep him from teaching? He�s back in the classroom finally and, after 8 months of no eating, drinking or lecturing, he would rather keep lecturing.


Susan, CG to husband, diagnosed April 2010, age 56, non-smoker, no HPV
Mandibulectomy on left side May 2010 followed by 30 radiation, 3 cisplatin treatments.
slash #127950 01-16-2011 08:10 PM
Joined: Apr 2006
Posts: 583
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
I just had another Dilation done. It is very easy procedure. In and out in one day. Yes, it does mean general anesthesia so he will need someone can drive him home. The procedure it self usually takes about 20 min. the rest of the time is recovery. It is well worth it and it can be done more than once.

Get it done it helps so much!!

Take care.. Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
DM32ASA #127953 01-16-2011 08:43 PM
Joined: Sep 2009
Posts: 96
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Sep 2009
Posts: 96
I have had three dilations done and will have more done. The reason they usually schedule more than one is that the scar tissue is tight and likes to bounce back so after one dilation it will usually close up a little. VERY easy and pretty painless. I had a little bit of a sore throat for a couple days afterwards but that was all. In and out the same day as stated above.


31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
BrandyK #127999 01-17-2011 11:09 AM
Joined: Jul 2009
Posts: 1,409
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,409
Ditto all the above. I've had at least half a dozen. You go to sleep, you wake up 20 minutes later, your throat is sore for a few days. But it really helps, so don't be afraid of it!

d2


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
David2 #129684 02-16-2011 04:05 PM
Joined: Aug 2010
Posts: 72
slash Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Aug 2010
Posts: 72
Tim went in today for the dilatation. It's a procedure to widen the esophagus. His esophagus was closed up due to radiation treatments. Not even water could go down, hence, his months of aspiration pneumonia caused by spit going into his lung (a common cause of death with head and neck cancer). During the procedure a tiny wire with a balloon is put down the throat into the stomach. The balloon is filled and the esophagus is cracked open. It was successful!

There is another side to aspiration. Tim cannot swallow. Hasn�t since surgery nine months ago - pre radiation and chemo. Tomorrow he starts VitalStim therapy. VS involves applying an electrical pulse to the throat muscles. The jolts of electricity remind the muscles how to work. If this works as well as the dilatation did, then Tim may actually be able to start swallowing and eventually eating. VS takes weeks of treatments until the muscles are strong enough for eating, but if it won't work it only takes a few sessions to realize this.

The procedure was outpatient. Tim was given a general anesthetic. He coughs and chokes on his spit so much that he doesn't sleep well, but now he's sleeping off the drugs and breathing easily. He coughed up wads of bloody loogie after the procedure, and I was told that huge clumps of mucus were suctioned out during. This is the first time in months that he's slept for over an hour straight! I hope that's a sign that some spit is actually going into his stomach.

Tim isn't recovering from cancer; he's recovering from cancer treatments. Please, pray that the VS works.


Susan, CG to husband, diagnosed April 2010, age 56, non-smoker, no HPV
Mandibulectomy on left side May 2010 followed by 30 radiation, 3 cisplatin treatments.
slash #129692 02-16-2011 05:06 PM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
I get those done every 3 to 6 months and had one a few weeks ago. You are put out for a total of maybe an hour to an hour and a half. Not much to it.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #129697 02-16-2011 05:31 PM
Joined: Aug 2010
Posts: 72
slash Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Aug 2010
Posts: 72
AAArrrggg! Please, don�t tell me that this is a 3 to 6 month thing FOREEVER


Susan, CG to husband, diagnosed April 2010, age 56, non-smoker, no HPV
Mandibulectomy on left side May 2010 followed by 30 radiation, 3 cisplatin treatments.
slash #129701 02-16-2011 06:20 PM
Joined: Sep 2009
Posts: 96
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Sep 2009
Posts: 96
I don't believe it will be an every 3 - 6 month thing. Part of it is how well your body reacts to the dilations. Usually you will have to have several as your body closes it back up a little due to the elasticity of the throat. After a several it shouldn't want to close up. I will be putting you in my prayers that the VS works and he is able to swallow again.


31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
BrandyK #129736 02-17-2011 11:28 AM
Joined: Jun 2009
Posts: 71
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Jun 2009
Posts: 71
The dilatation's are more frequent in the beginning (first six months) and then taper off. You may end up only needing it one time per year. It really just depends on how your body reacts to each procedure. Your doc should be able to tell you how stable the opening is from one procedure to the next. Based on the stability you make the plan. Best of luck we are all very hopeful for you.


11/1999 SCC tongue - surgery
1/2000 Met(s) in lymph nodes - modRND
2/2000-4/2000 RT ~6 weeks
end of 2006 SCC tongue - surgery
1/2008 SCC BOT - surgery / PEG installed
2/2008 chemo & RT
4/2008 last time I consumed solid food by mouth
airkitty #129739 02-17-2011 02:22 PM
Joined: Sep 2002
Posts: 642
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2002
Posts: 642
FYI, I had 2 or 3 dilations following treatment several years ago. However in the last 7 years or so, I have not had to return for any further dilations, so please know that not everyone must have them perpetually.

Best of luck.


Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
Page 1 of 2 1 2

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,264
EzJim 5,260
Brian Hill 4,918
Newest Members
makkie, richv0001, Vicki F, Lane768, George Nunnaro
13,312 Registered Users
Forum Statistics
Forums23
Topics18,243
Posts197,126
Members13,313
Most Online1,788
Jan 23rd, 2025
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5