| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Wow!!!! Thank you Karen for putting it in simple terms for me. Sorry but I dont have a medical background so sometimes dont understand technical terms. Thank you so much for taking the time to explain this. I appreciate it very much!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | you're welcome Christine and thanks to Brian who corrected me and added the fungal infection (sometimes I need to slow my fingers and speed up my brain)
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
| | | | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 65 | You did a good job. I didn't wish to detract from that.
We have things to deal with bacterial and fungal infections but those viruses..... they are an elegant design, and there is no such thing as a viracide. If we could kill them, we would finally have a cure for the common cold (rhinovirus)!!
And not just the oncogenic viruses that we talk about here are dangerous. The World Health Organization says that about 300,000 to 500,000 people die every year world wide from the common flu virus.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | My parents, poor impoverished uni students that they were, could not afford a honeymoon. So they volunteered to be subjects in a British research project on the common cold. They were taken to a holiday camp that had been especially isolated for the project, were given full use of the facilities but were only allowed contact with each other. Then they were injected with rhinovirus followed closely by the potential cure. Perfect honeymoon had the researchers actually managed to find a cure (and probably a nobel prize and knighthood for the researchers).
That was 1958
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Interestingly enough, if you Google "sinusitis radiation", Dr. Brook's blog and this thread are the most entries. The last major discussion of this was back in 2008 right when I joined OCF and at the time, sinusitis was the least of my worries
My misadventure with my latest MRI had a silver lining: since the radiologist's computer erroneously told him there were no prior MRI's to compare, he added two sections none of my prior MRI or Petscans did: [quote]Right Mastoid Sinus: There is some opacification of some of the air cells in the posterior aspect of the right mastoid sinus. This is typically inflammatory in nature Maxillary Sinuses. there are small air-fluid levels in both maxillary sinuses. This is consistent with acute maxillary sinusitis[/quote]
Of course I did have a wicked cold the week before, but thanks to this post and re reading the 2008 post, I am prepared to discuss this March 1 with my ENT. Thanks Doc and Brian Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Clicking a few pages more on google brought up another study by Dr. Huang et al on oral cancer patients concluding that [quote]Endoscopic sinus surgery is an effective treatment for irradiation-induced rhinosinusitis in NPC patients, improving ventilation and drainage of the paranasal sinuses, and facilitating regeneration of the sinus mucosa. [/quote] Mine's not that bad, but here's the link endoscopic sinus surgery on irradiation-induced rhinosinusitis The technical cite for the study is Otolaryngology Head Neck Surgery October 1, 2008 vol. 139 no. 4 575-579 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Dec 2010 Posts: 14 Member | Member Joined: Dec 2010 Posts: 14 | Hi Dr. Brook, I have a question. My sinuses seem to be a bit inflamed and sometime I can feel my heartbeat in them? Very weird. My radiation was directly under my chin, could this have affected my sinuses? When I push on them they feel swollen slightly painful? Thanks! Shelly
43,T1N0M0 Mucoepidermoid Carcinoma Int/high 9/10-1st surgery 10/13/10-2nd surg,UCSF Dr.Eisele rmv tumor,L floor mouth excised, muscle moved under chin,skin graft L thigh to cover. Neck disct 16 nodes 11/29/10-IMRT 30under chin
| | | | Joined: Aug 2010 Posts: 72 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Aug 2010 Posts: 72 | Shelly,
I�m not Dr. Brook, and I haven�t had cancer or cancer treatments. But when my husband was first being treated, I mentioned to one of his surgeons (ENTs) how I could �hear� my heart beat in my upper cheek and "see" it pulsing in the side of my right eye. I have had chronic enflamed sinuses for years and this was just my taping into my body. I notice my body much more now. It wasn�t anything to worry about. (and they gave me a nose spray that helped a lot)
I have a hard lump inside my jaw on the gums - like Tim�s tumor (except his was two inches long, mine is a pin point). I rushed to the periodontist. Tim had no risk factors; hence, my chances of cancer are greater than average. The lump turned out to be bone. It seems that I grit my teeth and that can make bits of jaw bone grow outward.
Cancer fights dirty, it gets into your mind as well as your body. It makes you think you are sick when you aren't and well when you aren't. Listen to your body and ask your doctor one-on-one to explain why. Don't hold out or be embarrassed. You know your body better than anyone.
Susan, CG to husband, diagnosed April 2010, age 56, non-smoker, no HPV Mandibulectomy on left side May 2010 followed by 30 radiation, 3 cisplatin treatments. | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Charm, I had the exact same wording on my early post Tx MRI's, they eventually cleared up.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Gary
Thanks. I did meet with my ENT this week and she reviewed the MRI scan images and thought it was very minor and definitely related to that cold I had. On a practical note, I had started using my Netty Pot again after that MRI and asked her about it, she thought it was a very good idea to keep the sinuses healthy. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
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