| Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | What is up with all this. I have been having dizzy spells now for three days, have an ulcer on my left gum between two molars, noticed a lump on the inside of my right cheek, and sore throat that has been there for a few weeks. Started antibiotics last Wednesday, and it has helped with coughing, but not the sore throat or anything else. I have a call into my ENT and RO to see what we need to do. This is getting so very old. How am I supposed to drive 45 miles while dizzy to HBO.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Angelia, I'm so sorry to read this. As if you need it! I would also get dizzy spells and still occasionally do. In my case I think some of it might have had to do with all the weight I lost during treatment coupled with my relative height - especially as I'd usually get dizzy when standing up too quickly. But I also had a condition a few years earlier that was diagnosed by a neurologist and could also be at play here, called Benign Paroxysmal Positional Vertigo (let's emphasis the benign part...) Here's a link that explains it, and gives you some simple exercises that knock it out. I did them and it never bothered me again. http://www.tchain.com/otoneurology/disorders/bppv/bppv.htmlNaturally this might have nothing to do with your own dizziness, but I figured it was worth mentioning. David 2
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Mar 2008 Posts: 404 Likes: 2 | After about 20 HBO treatments my vision became blurred and caused some dizziness. I felt light headed. Has your vision been affected? Most peoples vision slowly returns to normal once treatments finish. A small percentage can have permanent eyesight damage from HBO.
Karen
46 yrs: Apr 07-SCC 80% entire tongue removed,T4N1M0 Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs 30 x rad,6 x Cisplatin, 30 x HBO Apr'08- flap Recon + ORN Mandibulectomy (hip bone to reconstruct jaw) Oct'08 1 Plate out-jaw Mar'09 Debulk flap Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | That is a side effect no one told me about. UGH!
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im not sure but I think you told me you only got the tubes in one ear. Am I completely off the wall with that, or do you only have it on one side? If so that could be the cause of your dizziness. And yes, the vision can affect some people. It didnt bother me at all the first 85 HBOs I did, but the last 40 I had vision problems. It was so bad I probably shouldnt have been driving, I couldnt read road signs but could see people and cars but not clearly. Feel better!!!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: May 2008 Posts: 357 | Hi, David2 - I had a couple bouts of vertigo (not related to OC). My ENT assured me I wouldn't pass out when I did the exercises. It was scary, but I got through it. Thanks for posting the site.
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Yes Marlene, it's scary indeed! There were a few times when I'd wake up in the middle of the night and turn my head... and the room would start spinning out of control. Jeesh. But easily licked with those exercises.
That feeling plus the solid three months of nausea I went through post-RT have pretty much soured me on rollercoasters. Not that I liked them before of course.
d2
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Well, want you all to know that the dizziness went away as soon as I got of the antibiotics. Now as far as the gum ulcer, he said it was too small to do anything with right now and we need to keep any eye on it. I will see him again in two months or before if things get worse. They are always good about getting me in the same day if I have a concern.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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