| | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Suzanne, This just not fair! I am so sorry you are going through this again. Yes, there is never enough time kids when you have to work. You an I both have had 4 partial glossectomies. I can not believe you are looking at a fifth. I will keep you in my prayers.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Well, I'm staying positive..and one of the reasons I can is because of you all here. I'll be interested to hear what the doctor says on Tuesday. According to my doctor, I am just the kind of patient the doctor wants for her study. So, hopefully she agrees and we can start it and take it from there.
As far as my return to work...before I found out I may need surgery again Ray and I had a good talk. I finally felt as comfortable as possible and when I got the news I felt like that changed everything. But...it doesn't have to. I can still go to work like I planned, I'm not going to let this turn of events change anything.
Thank you all...
Love,
Suzanne
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Suzanne --
Actually, I am having PDT next Wednesday for aktinic keratoses on my head, neck and chest. I have had a variety of skin cancers (basal and squamous cell) over the years, and numerous AKs treated with cryotherapy. The wages of sin for 20+ years as a competetive swimmer in California in the days when it was all about Coppertone and SPF wasn't even a known term.
It apparently can do a nice job of handling pre-cancerous lesions, even before they become visible, at least in skin conditions. Hope things turn out well for you!
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Interesting Jeff...thank you for sharing. Have you had PDT before? I Googled Cryotherapy and it seems a little bit different. How interesting that there are different options out there...I just wonder why my doc didn't tell me about it before. I know there is no promise that it will work but it seems there is a chance.
Good luck on Wednesday.
Last edited by suzanne98; 02-13-2011 01:24 PM.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Suzanne sorry to hear about your news - I agree do not let this mess with your plans - PDT rounds very promising!!! good luck! Sending good healing vibes your way!!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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