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Joined: Nov 2010
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Jenslp Offline OP
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Posts: 167
Hi All,
Wanted to send out an up-date now that I've completed chemo and radiation (2/2/11)

Treatment was very challenging - had several personal pity parties while lying on the bathroom floor. Mentally, one of the most difficult things for me was that the "countdown" to the end of treatment really didn't mean anything since the 2 weeks post treatment could be equally challenging. I am thrilled to report that I actually have been feeling better every day since treatment ended! No nausea, diminishing oral ulcers throughout, rad burn improving, secretions are thinner, less mucous overall but not too dry, feeling a return to the normal cycle of life - wake/sleep patterns, energy improving, going for walks, and even went to yoga yesterday!
All that being said, I'm still on 50 of fentanyl and eating only ice chips while being supported by the feeding tube - so I know that I am in no way out of the woods just yet - just feel like I'm on a nice solid path to recovery!! This weeks' focus will be on tapering fentanyl and reinstating eating and drinking!

Thank you all for your support - I really did need it to get this far!!
Take good care!


Jennifer (39)
02/10 SCCa Tongue & Base, HPV-
03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out
Back at work and feeling good 03/24/11!
12/20/11 - 9 month f/u PET/CT - all clear!
Joined: Jun 2007
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Jan, Ive been wondering how you were making out. To me it seems like you just began treatments a couple days ago. Im sure to you it seems like you have been doing them for many months. Glad to hear you are doing so well. Consider yourself to be one of the luckier patients. Best wishes for a speedy recovery!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Nov 2010
Posts: 167
Jenslp Offline OP
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Nov 2010
Posts: 167
Thanks Christine! Don't get me wrong - treatment lived up to all expectations! I recall thinking before treatment started that the path ahead was long, dark and scary - and it was at times. It is amazing to be sitting here now and have the treatment phase over and to feel like I'm on the mend. I just want others to know that it really does get better - I think there were times when I actually doubted the truth of that!
Take very good care!


Jennifer (39)
02/10 SCCa Tongue & Base, HPV-
03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out
Back at work and feeling good 03/24/11!
12/20/11 - 9 month f/u PET/CT - all clear!
Joined: Jan 2011
Posts: 63
"OCF Down Under"
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"OCF Down Under"
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Joined: Jan 2011
Posts: 63
Hi Jen

So nice to hear that you are recovering well. As a new member this site and someone who has had a recurrence early in the game, I am fighting the fear factor so many times a day. My treatment will begin with a revision radical neck dissection on MOnday to remove the involved nodes and everything else. Then recovery, then on to chemo and rads. Seeing your story and positive attitude gives me more hope that I can get through the hard road ahead.

God bless and good luck with the rest of your recovery.

Liza


SCC of the Buccal Mucosa (R cheek)- T1N0M0.10 hour Surgery on 27/9/10 involving resection with freeflap from radial forearm..clear margins. Neck dissection..negative nodes.Trachy, NGT, no rad or chemo needed at the time. Neck lump positive for SCC..again! MND 14/2/11. Waiting to have chemo and rads
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Patient Advocate (old timer, 2000 posts)
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Nothing like hearing news that one of us is toughter than we thought. Your post , to me , suggests that you are accustomed to this new way of life and holding up quite well. Keep it up and kick butt. An imagination is a good thing, unless it works overtime.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Patient Advocate (1000+ posts)
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That's fantastic, Jennifer. Congratulations on getting through the worst. You're a fighter!

David 2


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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Glad you are doing so well - I think attitude has everything to do with it -- if you can relish even the small improvements - it really helps - many blessings to nownthat you are done!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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