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#129021 02-02-2011 06:50 PM
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It has been a few days since i have posted, but this is good news. I can actually eat some solid foods now!!! I have also not had to take any pain meds for a few days. It is still a little sore, but not bad enough for pain meds.
One another note, we are snowed in here in OK. This the most snow we have ever had and set a record. At least 18" in one day. I can not get my car out of the driveway. We are going on day three of snow days. I have not even been able to get to HBO, because they even shut down. Not to mention all the highways between me and HBO have been closed due to the weather. How crazy is that?


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #129024 02-02-2011 07:38 PM
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Posts: 1,301
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Great news and congratulations on your eating and lessening of pain. It is a long time since I have seen really good news from you Angelia.
It�s a crazy world as while you are having all this snow we are having a cyclone in the north of my country which was category 5 when it hit land around 12 hours ago and has also set records.
In any case both will pass and then you will be able to resume your HBO.
Best wishes for continued improvement.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #129027 02-03-2011 01:37 AM
Joined: Jun 2009
Posts: 138
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Oh I'm so glad you're finally getting pain free. I get my staples out of my stomach tomorrow so I plan on feeling a lot better too. You deserve nothing but the best.


BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
Bloop19 #129032 02-03-2011 06:32 AM
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So glad to hear that you are feeling a little better.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
slim #129034 02-03-2011 06:41 AM
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Posts: 8,311
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Glad you are finally catching a break!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #129042 02-03-2011 08:03 AM
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Catching a break from pain, but now I have the flu or something similar. It is gotten to the point now that I can not stand without getting faint and almost blacking out. UGH! The roads are still too bad for me to get out and my car is still stuck in my driveway.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #129075 02-03-2011 11:25 PM
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Posts: 357
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Glad the pain is letting up ... but now the flu!?!
Snow wonderful snow -
my roof and foundation are leaking. Construction people worked a little today & will return tomorrow to get snow off roof because we're getting more snow Sat. & Tues. I have more than 3 feet around my house & a lot on the roof. This will be expensive to fix:o(

Take care, Angelia ... spring is coming ... someday.

Marlene


Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
Marlene41 #129083 02-04-2011 07:29 AM
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I am ready for spring already. Doesn't help that I have a husband who will not do anything. Looks like I am goona have to go shovel my driveway myself.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #129097 02-04-2011 10:28 AM
Joined: Jan 2011
Posts: 6
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Posts: 6
Did he forget were the snow showel is?


T2N2bMx poorly-differentianted, HPV (negative)basaloid SCC of right tonsil
Diagnosed 7/16/2010 Began 7 weeks of radiation and chemo on 9/2/2010
Finished 7 weeks of radiation and chemo on 10/20
Final PET scan on 1/21/2010 Prognosis: cancer free!
Niener #129103 02-04-2011 11:30 AM
Joined: Jul 2009
Posts: 1,409
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That's great news, Angelia. I'm so glad to hear it, especially after reading about everything you've gone through. Life definitely becomes a lot lot better when you get back on solids!

I am however perplexed by this reference to "snow" you mention. I've seen the word in print here or there, especially lately. Oh well! There's a lot I don't understand about the world.

David 2


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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