| Joined: Jan 2011 Posts: 15 Member | OP Member Joined: Jan 2011 Posts: 15 | OK - I made it home from the brutal hemi-glossectomy. selective ND. Took my NG out after I demonstrated I could "swallw". Pathology on lymph nodes won't be back until Tuesday when I have incision drains removed. I need some guidance on a couple of things, please: How am I suppposed to swallow antibiotics in capsule form? They stick in my mouth and can't get to my throat to be able to swallaw and taste awful if I try to break them up. When is it appropriate to move from water/juice/broth to say sherbert or milk? If there is a better place on the formu please direct me. 3 days in ICU after 24 hours in recovery. I'm still pretty out of it.
Craig Male Real Estate Broker 57 Dx SCC 12/17/2010 Hemi-glossectomy and Selective ND 1/21/2011 T2N0 Submental island flap NG out 1/25/2011 ND Pathology 34 nodes out, all benign Non Smoker since 1984 moderate alcohol consumption
| | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2010 Posts: 531 | first of all why didn't they give you liquid meds? that's crazy to send you home with capsules! what the heck? call doc get liquid form of meds. and when to move to other foods/drinks? when you can eat or drink them without difficulty I would say. If you can get it down that is great for you, do it.
CG to Ron Out of Pain 4/3/13 4/12-lung and under chin growth no treatment 1/13/12 lung biopsy 6/11 recur 6/30 resection #2 Clear margins Clear 12/10 Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out RAD 30 8/10 DX 4/2/10 "Oral Cavity" T3NOMO 12/28/07 Non Hodg Lymph remission 7/08 passed away 4.3.15, RIP Ron, you are greatly missed
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | When you were released the nurse should have gone over details including eating and drinking. From the sound of it you do not have a feeding tube. That would have been helpful with the meds. Yes, call the doc and ask for liquid form medications. Also ask about eating/drinking. Your doc knows you best and should be able to advise you on this. Some people need a swallowing test to see their eating/drinking capabilities. If you try too soon some liquids could go into your lungs (aspirate). ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | Craig,
Welcome home! Do you have anyone to help you over the next few weeks? If you are "out of it," it can be very difficult to know when to take meds and to know how much you are getting. I, too, am surprised that you were given capsules. Liquid meds are the way to go. Please discuss this with your doctor. My husband had his NG for 6 weeks post surgery and everything went into it--meds, liquid nutrition. Good for you that you are swallowing but if you are having difficulty getting things down, they can always put the NG back in temporarily. It is so important to consume 2500 to 3000 calories every day to promote healing. Good luck with this and take care of yourself.
Anita
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
| | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2010 Posts: 531 | ya i thought he said he demonstrated he could swallow already thats why he don't have the feeding tube. scared me for a minute that i jumped the gun bout eating whatever he is able to tolerate. whew.
CG to Ron Out of Pain 4/3/13 4/12-lung and under chin growth no treatment 1/13/12 lung biopsy 6/11 recur 6/30 resection #2 Clear margins Clear 12/10 Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out RAD 30 8/10 DX 4/2/10 "Oral Cavity" T3NOMO 12/28/07 Non Hodg Lymph remission 7/08 passed away 4.3.15, RIP Ron, you are greatly missed
| | | | Joined: Jan 2011 Posts: 15 Member | OP Member Joined: Jan 2011 Posts: 15 | Thanks All: I think every doc is different. If I couldn't demonstrate the ability to "swallow" then they were going to keep me in the hospital. I was so miserable I willed myself to take a few sips and am glad they let me go home. My wife is here taking good care of me. I figured out a little trick to place the capsule at the back of the non-surgery side of my tongue and wash it down. Originally was going to have NG tube in for 2 weeks but they decided to take out on the 5th day. I was having trouble tolerating the NG (choking). Also, they took the "flap" from under my chin rather than forearm.
Craig Male Real Estate Broker 57 Dx SCC 12/17/2010 Hemi-glossectomy and Selective ND 1/21/2011 T2N0 Submental island flap NG out 1/25/2011 ND Pathology 34 nodes out, all benign Non Smoker since 1984 moderate alcohol consumption
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | I guess you're doing better now I didn't see this before - but you could always crush it and mix it into your drinks - you should not have been given capsules!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Before crushing any medication, check with your doc or pharmacist. Time release medications should not be crushed. It will make it so that all the medication is given at once instead of time released. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | True and very good advice! I had a duh moment!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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