| | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) |  "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Cheryl,
I had my lip split but just to the crease in my chin. That was the quickest part of my anatomy to heal and you need to look really look to see the scar. They did take a small amount of bone during surgery but don�t know exactly where from and it was not invasive. I can ask at my next routine visit. This was for testing only and I remember the pathology took the longest to come back. It was explained that it gets crushed to test. I was happy to get the all clear on that around one week later while recovering in hospital.
Wishing you all the very best with your surgery.
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2010 Posts: 128 | Cheryl,
my dad had his surgery on December 7 which included splitting of the jaw, you would not believe how well he is healing.. i cannot even see the scar.. its amazing how much the body can handle.. best of luck to you! this website is great for support..
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux..
Painfree and rested 6/19/12
| | | | | Joined: Dec 2010 Posts: 24 Member | | Member
Joined: Dec 2010 Posts: 24 | Hi Nomadic,
I did not have any traces of cancer in my throat. Check out some of the other threads here, as they are several people that have had throat cancer.
Good luck!
2001 age 30 SCC on LS Tongue, non smoker, casual drinker. Partial glossectomy
2002-2006 yearly Lichen Planus, 8 surgeries, PDT for 6 mths
2007 1/4 glossectomy, neck dissection, radial forearm flap, 18 nodes removed, trach
2009 erythroplakia gums, 3x cut
2011 SCC gums,recovering surgery Feb
| | | | | Joined: Dec 2010 Posts: 24 Member | | Member
Joined: Dec 2010 Posts: 24 | Hi Cheryl,
I don't have my surgery date yet. Hopefully soon. I am guessing it will be mid Feb or late feb. It sucks, because I can almost feel the cancer manifesting, can't wait to just get it out.
The lichen planus that I had on my tongue was supposed to be taken care of when I had the radial forearm flap procedure, but there may be areas forming right where my flap attaches to my tongue. I have not talked about treatment for that yet with my EMT, as I have tried inhibitor drugs, photodynamic therapy already with no success. I will look into what you were talking about.
I read up on the imaging guide CT for real time viewing that you mentioned. That sounds like the way to go. You should insist they use that for you to be as minimally invasive as possible.
2001 age 30 SCC on LS Tongue, non smoker, casual drinker. Partial glossectomy
2002-2006 yearly Lichen Planus, 8 surgeries, PDT for 6 mths
2007 1/4 glossectomy, neck dissection, radial forearm flap, 18 nodes removed, trach
2009 erythroplakia gums, 3x cut
2011 SCC gums,recovering surgery Feb
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Cheryl,
I have had 4 partial glossectomie. 3 by one doc and 1 by the doc I currently see. I have never had anything split. I'm sure others on here will chime in soon:) I just wanted to you know there are people out there that had it done and it was minimally invasive. I wish you luck and will check in to see how your doing.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | OP "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Apparently - my dr. Is the guy who spear headed the image guided surgery - I very much hope he will be using it on me - I will ask him tomorrow! If you are having surgery - I would suggest mentioning the possible return of the planus along your flap - perhaps they can do something about it - I would seriously suggest taking whatever treatment you can for the LP - and include bumping up you antioxidants and live probiotics- it helps!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | OP "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | That's Suzanne... Hopefully I can avoid it - I will know tomorrow!! Eeek!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Cheryl,
How did your appointment go? Any news?
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | OP "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | I finally met my dr. And I am due for surgery the first week in feb (yay! And EEK!) - he doesn't know for sure if he will have to split my jaw. He made me sign off on it - and said the he would only do it if it was necessary to ensure he gets all the cancer. that's all I can ask for. I am not crazy enough to worry about the way it looks with my life on the line. I would rather be cancer free - and have a small scar, than have them not get it all because I didn't want a scar! heavy sigh... I need to become close friends with a good plastics guy! 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jan 2011 Posts: 15 Member | | Member
Joined: Jan 2011 Posts: 15 | Curious about conversations with the doc relating to RT: I am having my Partial Glossectomy and Selective ND on Friday with similar presentation to yours and the possibility of RT seems to be remote according to the discussions to date. From what I understand it seems like most challenges of treatment come from the RT and collateral damage associated with same and I am hoping to dodge that bullet. Any thoughts?
Craig
Male Real Estate Broker 57
Dx SCC 12/17/2010
Hemi-glossectomy and Selective ND 1/21/2011 T2N0
Submental island flap
NG out 1/25/2011
ND Pathology 34 nodes out, all benign
Non Smoker since 1984 moderate alcohol consumption
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