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#128056 01-18-2011 05:58 AM
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Bloop19 Offline OP
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I have now been in the hospital a week and they are saying I need a blood transfusion. Why would my blood count deteriorate with me just laying here and getting tests. They have done no procedures except a colonoscopy. Does that mean I probably have internal bleeding? No one will answer my questions.


BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
Bloop19 #128059 01-18-2011 06:37 AM
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Are you getting whole blood? red cells? platelets?? If they won't answer your questions, don't accept the transfusion! That's completely unacceptable.

- Margaret


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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HERE I GOT A JOKE TO SEND TO YOU
MAYBE YOU CAN USE IT IT IS CALLED

HOW IS NORMA?
A sweet grandmother
telephoned St. Joseph 's Hospital. She timidly asked,
"Is it possible to speak to someone who can tell me how a patient is doing?"

The operator said,
"I'll be glad to help, dear. What's the name and room number of the patient?"

The grandmother in her weak, tremulous voice said,
"Norma Findlay, Room 302."

The operator replied,
"Let me put you on hold while I check with the nurse's station for that room."

After a few minutes, the operator returned to the phone and said,
"I have good news. Her nurse just told me that Norma is doing well. Her blood pressure is fine; her blood work just came back normal and her
physician, Dr. Cohen, has scheduled her to be discharged tomorrow."

The grandmother said,
"Thank you. That's wonderful. I was so worried. God bless you for the good
news."

The operator replied,
"You're more than welcome. Is Norma your daughter?"

The grandmother said,"No, I'm Norma Findlay in Room 302. No one tells me shit."



CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
SUEZ #128067 01-18-2011 08:37 AM
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Yikes that's scary. I agree, ask why you need a blood transfusion. I have signed a consent for one for my surgery, but I will be donating my own blood towards it.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #128068 01-18-2011 09:01 AM
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Posts: 138
Bloop19 Offline OP
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Well I guess they are giving me a transfusion because my blood count is low and they are planning surgery for tomorrow or Thursday. But the surgery is just to unblock the obstruction, it is not a cure. The pathology reports came back and I have colon and lung cancer and I'm terminal. Boy that sure was fast going from one almost clear PET scan to cancer spread throughout my body. They won't say how long I have but they told me it would take about 4 weeks to heal from the surgery and then to do whatever I want to do as long as I can.


BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
Bloop19 #128072 01-18-2011 09:48 AM
Joined: Jun 2009
Posts: 875
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Barbara:
I am so terribly, terribly sorry. Is there any way/hopes to have a second opinion for some sort of treatment? I will be praying for you, my pal, and also praying that there is some hope. You certainly have everyone's prayers and concern. Please keep posting and updating us.
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
julieann #128089 01-18-2011 01:17 PM
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Barbara, I am very sorry to hear your news. I will keep you in my prayers. Please keep posting and let us be here for you. I just wish I could do something to help.

Wendy


Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear

wendys #128094 01-18-2011 02:45 PM
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All I can do is tell you that we are here for you - we all will do whatever we can to help you. I'm would expect you would be in shock at this unwelcome news. You are in my prayers.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Bloop19 #128108 01-18-2011 06:01 PM
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god bless and do ask for a second opinion. step father was diagnosed with colon, kidney, lung, liver and brain tumors. They weren't going to do anything for him, but then he seemed to be getting better mentally after a few weeks. As it turns out he had colon cancer. It had metastasized to his liver. There was no brain involvement - they do make mistakes - he'd had a minor stroke - and the mass on his kidney was scar tissue - they removed a small part of his liver, colon, and a bit of his lung - and he lived for another 8 years - and it wasn't cancer that took him - when they went in to remove his kidney - they had already started cutting before realizing it was scar tissue so they removed it. A year ago he got sick - ended up in the hospital and the one kidney he had couldn't help him fight the infection he had. A second opinion will definitely not hurt.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #128114 01-18-2011 06:29 PM
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Posts: 96
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So sorry!!! I will be putting you in my prayers and I would also agree to get a second and maybe even a third opinion. As seen a a different post people all over in the hospitals make mistakes.


31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
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