#12750 11-02-2007 05:08 AM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | Talk about God working in mysterious ways. The hole where my tube came out of my stomach got infected and I called the doc and he tells me to come in today(Friday) and we would see what to do about it. I told him on the phone that I wanted it out since me and my wife feel I am eating good enough to survive without it. He told me as long as I felt that way he would take it out. I feel the infection was Gods way of getting me down to the doc to get it out. I am very nrevous about all of this because I have gotten very used to the tube and always knew if all else failed I could get my nourishment through the tube. I feel like this is a blessing though and if the time wasnt right to get it out then none of this would have happened.
Billy
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#12751 11-02-2007 09:42 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Yo Billy--Go! There are so many stories on here of people who've been peg-dependent for years and getting it out must be a HUGE change, but you're so strong, you'll cope with the eating, one way or another! Another step  Well done, Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#12752 11-02-2007 01:15 PM | Joined: Nov 2006 Posts: 167 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2006 Posts: 167 Likes: 1 | Way to go Billy!! It was a good day all around. Today I had my IV port removed and hope this closes this chapter for good. Again, Congrats.
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 | | |
#12753 11-02-2007 01:31 PM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | That is great news Bill. I am glad to hear you are doing well buddy.
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#12754 11-02-2007 05:00 PM | Joined: Mar 2007 Posts: 179 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2007 Posts: 179 | Yea....Billy, I knew you could do this!!! So proud of you my friend. Keep me posted on your journey. Prayes and well wishes, LJ
CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
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#12755 11-02-2007 08:17 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | One more step FORWARD !!!! Good for you !!!
SHar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#12756 11-03-2007 05:30 AM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | They are picking up my feeding pump and my suction machine next week. I have deep suction catheters and several bags for a dual kangaroo Joey pump. Any suggestions on what I should do with them? I want to donate them to someone or an organization that can use them.
Let me know if anyone has any ideas.
Thanks,
Billy
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#12757 11-03-2007 09:58 AM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | So Happy for you Billy,
I was peg dependent too. Now, I have gained so much weight, my pants won't fit. It is so much fun to eat now even though I can only eat on one side and my teeth do not meet, somehow, I tried one food at a time and it still takes me forever to eat. BUt I just take my time and relish every minute of it. It was so scary at first. Keep Carnation Instant Breakfast on hand, just as a backup. That made me feel better.
Take care!
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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#12758 11-03-2007 11:04 AM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | It is scary and I was scared to have the tube taken out but my wife told me it was time and I agree with her. It takes me a long time to eat also but I try not to get in a hurry. I have some Carnation here and I also have 11 cases of my Nutren which I drank this morning mixed with some milk. Yummy...LOL
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#12759 11-04-2007 12:40 PM | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | Glad you got that thing taken out! That was a huge day for me. I've had mine out since June and still takes me much longer to eat than everyone else. Take care!
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
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