#1272 05-31-2003 06:17 AM | Joined: Mar 2002 Posts: 4,918 Likes: 70 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 70 | Mark, I suspect that if any of us were in that 6%, we wouold be damn glad we had it. I believe that the author
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#1273 05-31-2003 09:11 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Hey Mark - I had the chemo - I'll TAKE the extra 6%!
Gary
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#1274 05-31-2003 04:15 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Thanks Brian, Gary I'd take an extra 6% too except that today I'm at 100% and there can't be any more! 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#1275 06-01-2003 06:20 PM | Joined: May 2003 Posts: 3 Member | | Member
Joined: May 2003 Posts: 3 | David:
I had a SCC primary in my right tonsil with metastasis to the right lymph nodes. One node was 10cm. I my case I did not have chemo because it was my Drs. opinions that is was too toxic for me and only 2-3% effective. I had a radical neck dissection and radiation. So far this was an OK choice to me. However, I believe the primary location is a factor. SCC with the primary in the tongue can react quite differently from SCC with a primary in the tonsil.
My prayers are with you.
Aug. 2000-diagnosed SCC Tonsil; Stage 4; May 2002-diagnosed Multiple Sclerosis
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