| Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | We often talk about how radiation is the gift that keeps on giving. My cardiologist just did a ultrasound on my carotid artery and everything was fine. His experience was that long term effects of radiation to base of tongue cancers appear anywhere from three to ten to fifteen years after radiation. It's a quick painless test, Here is a link to a nice visual chart on how radiation can damage the carotid. You have to scroll down midway thru the article to click on the link labelled view illustration: late effect of radiation. I couldn't get the sub link to work Late effects of radiation The article its from is very interesting and it appears that the IMRT now is better focused than the old radiation but I hope to live those ten to fifteen years to find out for myself. Keep the faith Charm
Last edited by Charm2017; 12-30-2010 03:43 PM. Reason: url glitches
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I hope Gary, our resident radiation expert, and/or Brian comments on this. I have e mailed this to my RO to see what comments he may have as well.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | As one who now has 3 stents in my right carotid since 2008 which keeps getting blocked over 90% at different points, I can attest to this being true. I had XRT in 1997. My cardiologist says my problems are the results of that radiation. My left is blocked about 60%. Cholesteral is excellent on meds. Keep an eye on it. I had no symptoms the first time.
This is not limited to those with base of tongue cancers. Mine was an unknown primary with mets to one node in the neck.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | Joined: Aug 2010 Posts: 72 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Aug 2010 Posts: 72 | Thanks Charm,
This was a really interesting story. And the site itself is really great, too. Dr Lamonte is so correct when he points out that patients need to educate themselves, instead of assuming the doctor always knows best.
But, instead of just telling patients, Dr. Lamonte should work to educate his colleagues. My husband�s RO would roll his eyes if I showed him this. The phrase �I saw this on the Internet� doesn�t go over that well with many doctors. The anecdotal evidence is strong, but until it gets published in a medical journal many doctors are not going to take it seriously.
Susan, CG to husband, diagnosed April 2010, age 56, non-smoker, no HPV Mandibulectomy on left side May 2010 followed by 30 radiation, 3 cisplatin treatments. | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Goof thinking Charm, I had mine biopsied a few months ago, and ultra sound too. The biopsy is when the pain meds did nothing but all was well. Evne if I did leave life size prints on the edge od that table. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2004 Posts: 598 | I had an ultrasound last Spring, and all was good, but agree that this needs to be part of the ongoing monitoring we all endure. Jeff SCC Right BOT Dx 3/28/2007 T2N2a M0G1,Stage IVa Bilateral Neck Dissection 4/11/2007 39 x IMRT, 8 x Cisplatin Ended 7/11/07 Complete response to treatment so far!!
| | | | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2006 Posts: 294 | Great advice Charm. A check of the carotid was never discussed with me by any of my treatment team. I first learned of this through my Cardiologist when I had my first post-canter TX echo I have annually to keep tabs of a leaking Aortic valve. I do this at Emory here in Atlanta where I also had the cancer TX to where all of my records there are consolidated. This enabled my cardiologist to be so informed of the cancer activity as I don't know if I would have had any reason to bring it up with him. He has advised of a periodic carotid check for me as well.
Bill D.
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
| | | | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Mar 2009 Posts: 147 | My MO recommended I have a corotid ultrasound last Fall. I did and all was fine. His recommendation was a result of my migraine headaches disappearing subsequent to completing radiation. He thought possibly a constricted carotid could be the reason but all was fine.
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10 | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Carotid aterery occlusion, due to radiation damage, is part of collateral damage for many H&N patients. An Ultrasound scan is a good idea. Some have had to have stents installed.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Jan 2008 Posts: 29 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jan 2008 Posts: 29 | Hi Charm, Saw this in an email from CURE today. I was treated at Methodist Hospital in Houston, TX first half of 2005 for StageIII BOT. My medical oncologist sent me for a MRA shortly after discharge and all was well, but I will get this checked again soonest. Thanks for the post. Harry
Dx 12/2004 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)
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