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Reading the China Study as we speak:)

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Hellow Whitma.... I too am in NC. My aunt wast treated here in Charlotte, NC. After reading this thread, I felt compelled to second Brian and others. Not to be redundant but this is a deadly cancer. My aunt was treated very aggressively for early stage cancer with no lymph involvement. While the radiation sucked badly, she is alive and doing very well. Back to eating normally and living her life. It is, of course, your choice to determine the treatment that is right for you, but if you screw around with this disease, the cost is likely to be you life. I hope that your death will not be the lesson used to teach others the importance of attacking this cancer with all of the barbaric treatments available today. Best of luck to you.

D


Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
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Jennifer, please take this response respectfully as I mean it very much to be so.

You may not realize that Brian Hill is the founder and leader of OCF. It's because of him that we're all here, and a more compassionate presence would be hard for me to imagine. Like the rest of us, he's trying to guide you toward saving your life and not throwing it away on wishful thinking.

If your faith and changes in your diet help you, that's great. But what's even better is the news that you're going to all those cancer centers, some of the best in the country, and that you intend to get the surgery you need.

I hope you listen to what your doctors tell you, that you continue to eat right, save dogs and everything else!

Thanks for listening.

David 2


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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Jennifer,
I can only second what everyone else is saying, particularly Brian. Please don't wait around hoping for a miracle. I am also glad that you are seeing the top docs in the country. Listen to them, Brian and all of your friends at OCF. Good luck!


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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Jen

If you are actually reading the Chinese study then you will start eating tremendous amounts of mung beans (until you realize what the Chinese authorities did, it's false) Brian is not angry at you nor is anyone else here angry at you. His post is as far from "bullying" as possible. It's just that on OCF, posters can have their own opinions, just not make up their own "facts". You just ignore your prior posts which insult everyone here as though you actually know something about oral cancer but we have all been "tricked" somehow by traditional medicine. Let me be the first to call you on your bad attitude. In Catholic theology, you would be deemed to be "vincibly ignorant" which is actually worse than "invicible ignorance".

It could just be a vocabulary issue or maybe a basic grammar issue. When you use the conjunction "or" in your subject line, it means you are going to pick one or the other, either holistic or traditional medicine. Holistic means different things to people. We all recognize that its much better to eat healthy and pretty much all the OCF posters are in fact "holistic" if you use the reasonable American Cancer society definition: [quote]In mainstream medicine, a holistic approach generally means a more inclusive approach to a person�s health, one that includes the patient�s social and cultural situation as well as his or her illness. This term holistic is used by doctors to reflect a focus on a person�s overall health, a focus that includes prevention, rehabilitation, and other approaches, rather than illness alone. [/quote]

No one quibbles with that. Unfortunately as the ACS notes
[quote]Available scientific evidence does not support claims that holistic medicine, when used without mainstream or conventional medicine, is effective in treating cancer or any other disease.
[/quote]

Take a look at their webpage on this issue
ACS holistic medicine

IMO you owe Brian an apology.
Charm



65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Your time is limited right now. You should be trying to learn about your cancer and what will happen with treatments instead of being argumentative. Your life is about to dramatically change and you will go thru the hardest period in your whole life. You could find yourself horribly disfigured, unable to speak or walk, unable to eat properly again or worse yet, maybe the cancer will win. You will find some friends and family will turn their backs on you like you are a leper. You may be hospitalized for dehydration or malnutrition. You could lose your job, your home and eat from a tube. Now is not the time to criticize Brian for anything. He created OCF for patients and their caregivers to be able to find up to date, correct information and support. Get your priorities in order and prepare for the fight of your life! You may think you know better and that I am overreacting, I am just being brutally honest with you.

The worst day of my life was when I was too weak to walk and my teenaged son had to push me in a wheelchair into the doctors office. My doctor took one look at me and admitted me to the hospital. My own sister turned her back on me. She had promised to help me and when the time came to step up she was 'busy'. Prior to my life with cancer, I was a relatively strong, healthy person. Now I am disabled.

From here on out, I will focus on helping other new members instead of wasting my time with someone who doesnt appreciate it and 'knows better'. I owe Brian a huge thank you for creating OCF. As do you, right along with an apology!!!


Last edited by Gary; 12-31-2010 03:28 AM. Reason: leaper s/b leper

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 329
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Jennifer,

You said probably your lymphnode, either it is or isn't. Did you have a CT/Pet Scan? What stage?

I'd listen to the above they are very knowledgeable. I didn't take Brian's post as being a bully he was giving you advice, I'd take it if I were in your shoes.

Hope all goes well for you at your appointment.

Connie


SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.

CT Scan 9/11 clean, CT Scan 9/12 clean


Moffitt Cancer Center in Tampa, FL. A+.

My hometown Lockport, NY.



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I'm sorry you took my post to be bullying. That wasn't the intent. Truth is we have had people on the boards over the last ten years that are looking for alternatives, and trying to help them wasn't fruitful when their minds are made up. I just wanted to stress to you that these boards are not a forum for exploring alternatives. There are other sites out in the web that are. We deal in evidence based information that can be substantiated or personal testimonial of experiences. These boards are also open to people of many different belief systems, including people that have none at all. That is why the agreement to use them states clearly that religious diversity is the rule, and that to the extent possible we keep religion out of the boards.

I will stay away from your postings, until they wander across the rules of the forum. Then I or another admin person will intervene. None of this means that I do not wish you well in your battle, and the most rapid return to health and a normal life possible.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Jen

You posted [quote]I know ppl have been made cancer free through radically changing their lifestyle, especially what they eat. That is a fact[/quote].
Can you share the names of these people? If it was the woman on Oprah, Kim Tinkham, she has died of that cancer which was "cured" holistically on Dec 7 of this year.. If it's Suzanne Sommers, she had conventional surgery which saved her, but she can't sell that. The crazy sexy cancer gal has a cancer that is so slow moving and "indolent" that patients usually have 20 years and she's done 7 so no difference if she had done nothing but she does go to Dana Faber and is eagerly awaiting conventional drugs. I have not been able to find any real person. All the ABC 20/20 Special patients who were on TV swearing by their alternative cures are all dead of their cancer, usually within a year of TV. As far as I can tell, without exception, each and every "testimonial" you find on the Internet about non conventional cures is due to one of three causes:
1. The patient never had cancer to begin with. It was either an erroneous diagnosis by a legitimate doctor or a diagnosis based on an unscientific and unvalidated test used by the alt-med practitioner. This is more common than one might think
2. The patient underwent partial conventional therapy before abandoning it for alt-med (for example, an excision but no radiation or chemotherapy, like Suzanne Somers or Lorraine Day).
3. The patient still has cancer but, like Kim Tinkham, has been told by her practitioner that she is �cancer-free.� If the tumor is slow-growing, this may be convincing for many months or even a few years until they die like Kim did.

So please share the name of these people you know for a fact have been cured. I mean they must have names right? And if you know for a fact they have been cured, you must know who they are. Or is it that you have been fooled? As an obviously very religious person, shouldn't you be more wary of such snares of Satan? Don't you know the Prince of Lies is behind almost all of these internet scams, stroking the greed of the fraudsters?

But prove me wrong and pony up the names.
Charm

Last edited by Charm2017; 12-30-2010 06:17 PM. Reason: toned it down

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: May 2009
Posts: 1,412
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As I read through this post I am very discouraged at the way people are treating each other. With that said I agree with Brian, Christine and the others. I am a two time survivor and had surgery, radiation, and chemo. Yes, the treatments are no cake walk, but I am alive today to see my kids growing and learning and Love every minute of it. You really do need to listen to those Doctors you are going to see. I fthey suggest surgery, rads, and chemo and I would do it. They know what they are dealing with and have helped many others going through it. I will tell you right now that OCF has changed my life, and I have Brian to thank for that. Without Brian we would not be here encouraging and helping one another through a difficult process. before, during, and after treatment.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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