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Joined: Jan 2010
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I am scheduled for my 2nd scan since treatment ended on May 5th. In the the last couple of weeks maybe not that long I have noticed a hard white area on the inside of my jaw. If you could draw a line straight through it would be almost exactly where the tumor was on my lip. It is white as was the tumor and seems to be growing by the day. I have a call into to Doctor to see if he wants to do anything different since I don't do well with PET Scans, the premedication is a problem, I was to have an ultrasound. Can anyone tell me if a recurrence would grow this fast I mean almost overnight? I know wishful thinking.


55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
5/25/2025 All Clear
Joined: Jun 2007
Posts: 10,507
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My firt recurrence was almost exactly where my original tumor was. Sorry, I dont know how fast a tumor would grow. But, anything that has been there for over 2 weeks needs to be examined. Hopefully it is only scar tissue.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jan 2010
Posts: 142
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Joined: Jan 2010
Posts: 142
They have responded and I am going to see them on Tuesday after the Ultrasound. It is going to be a long weekend.


55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
5/25/2025 All Clear
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Joined: May 2009
Posts: 1,412
How did it go? I will tell you the my 2nd time around the cancer was in a different spot. If what is in my mouth now turns out to be something, it will be in the exact same area as the 2nd time around.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Jan 2010
Posts: 142
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Joined: Jan 2010
Posts: 142
I was due for 8 month check up yesterday. They did an ultrasound I refuse to get CAT scans every 4 months. I knew going into the Ultrasound that there was no way I would get out without a biopsy. Sure as heck they found one Lymph node that was just a bit different than the others. Doctor said he really didn't think it was cancer but to just be sure....... I asked him why would it show up on the right side when the cancer was clearly on the left side. He said well then I am even more sure it isn't cancer. Needle please, he did the biopsy "just in case".
Saw the dental oncologist and either the tori are returning or
the jaw bone is dying from the radiation, just wait and see.


55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
5/25/2025 All Clear
Joined: Sep 2006
Posts: 8,311
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Posts: 8,311
Is he just talking about a FNA or actually removing that one node and testing it while you are on the table?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Jan 2010
Posts: 142
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Joined: Jan 2010
Posts: 142
Did FNA then get results on Tuesday. Dentist checked and the spots are either bone that is dying or Tori returning


55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
5/25/2025 All Clear
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
What were the results??


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Jan 2010
Posts: 142
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Jan 2010
Posts: 142
sorry I jumped over to Survivor to post results which were Negative Yeah!


55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
5/25/2025 All Clear
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
YEAH!!!!!!!!!!


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12

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