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#125625 12-03-2010 05:15 AM
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I have finally done enough research to realize that the enlarged noduel in my neck is not a lymph node it is my thyroid. I am getting ti checked today with my RO. How common is it to get thyroid cancer not even a year after the end of treatment? Is that something I should be concerned about? It is extremely hard and much bigger on one side than the other side. I am hoping it is nothing.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #125634 12-03-2010 09:01 AM
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Thyroid cancers are a completely different family of cancer than what we normally talk about here. They are endocrine system cancers, which if caught early are surgically resolved and then a life time of synthetic hormones takes care of the lack of a thyroid. Essentially those of us that are acutely hypothyroid from radiation are on the same regime as someone that has had the surgery. It would seem odd for you to get it, but after Hiroshima there were a ton of these in that exposed survivor population, so it is clear that radiation can cause them. Good luck with this, enlargement may not = serious.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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My RO said it may be my thyroid, but he was not concerned about that. He is concerned about all my other symptoms: the right arm pain, lower back pain, right ear pain, cough, occasional shortness of breath, and most of all the night sweats I have been having. I know PET scans ar enot the end all of end alls, but he is ordering another PET scan and also took some blood to do a full blood work up. He said that if the blood work ot PET scan do not show up anything that he will send me to a disease specialist to getsome more tests to find out why I am having all these issues. I am just ready for some answers. I just love when all the Drs each have a differing opinion.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #125678 12-04-2010 01:21 PM
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Night sweats can definitely be caused by a damaged thyroid.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #125681 12-04-2010 02:36 PM
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David,
That is what he said. I also have even more decreased energy than I did just a few months ago. What concern me is the lower back pain as it is a constant consistent pain that gets worse when I stay in one position for to long.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #125682 12-04-2010 04:55 PM
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Hi Angelia,
My thoughts are with you. It's frustrating when docs can't tell you wants wrong. I've got my fingers cross for you that Its nothing serious.

Minh


35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
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Angelia,
Thought I would just throw my two cents worth in-- I had a thyroidectomy 9/1/2010 at the same time as the excisional biopsy of my mouth. I had had nodules on my thyroid gland for years, and a LOT of people are walking around with thyroid nodules that are totally benign. However, I had developed a type of thyroid cancer (totally unrelated to the salivary gland cancer). As my endocrinologist told me, though, if you have to have a type of cancer, thyroid cancer is what you want. It is very easy to treat,and taking thyroid medicine is no big deal. I needed no other treatment for the thyroid cancer after the surgery. Some people have the surgery and then have to take a radioactive pill. I hope your doctor is able to give you some peace of mind and figure out the cause of all your other symptoms! Good Luck!


Susan
Age 51, married with four kids age 11-18, 9/1/2010, Bx: high grade mucoepidermoid CA left sublingual gland.
10/8/2010, wide excision left floor of mouth, modified radical node dissection left neck.
T1N0M0. IMRT started 11/22.
Never smoked, light social drinker
Also happen to be ICU RN
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Has anyone tested your TSH now? Did they test it pre Tx? It's easier to compare if the pre Tx level has been determined.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #125700 12-05-2010 05:36 AM
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I had a TSH test, a few months ago and it was normal. He said he would test i again to see if there was any change. I did have TSH test about a year before cancer.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #125750 12-06-2010 06:29 AM
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In a few months it can go bad. Most that suffer from radiation caused damage find out months post Tx that it is bad.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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