| | Joined: Oct 2010 Posts: 15 Member | OP  Member
Joined: Oct 2010 Posts: 15 | The readers of my blog, Head Nurse, have made it possible for me to buy a Therabite and donate it to somebody who needs it. First come, first served: post here with an email address and I'll get with you on shipping details. If you're not the first, post anyhow, because my goal is to manage to fund--through the generosity of readers--two Therabites a year for the readers of these forums. At least. I am conscious every day of how very very blessed I am. Not only do I care for oral cancer patients who've had neck dissections and glossectomies and what-have-you in the ICU, but I'm an oral cancer survivor myself. I'm *incredibly* lucky, having had a low-grade, boring sort of cancer that was curable with surgery. This is my chance to say thank you to the people who post here and to maybe give back just a little of what's been given to me.
Polymorphic Low-Grade Adenocarcinoma (PLGA), dx'ed 9/10. Surgery 10/20/10--resection of soft palate and right hard palate. Of the 36,000 oral cancers dignosed in a year, I get the one that sounds like a golf tournament. Sheesh.
| | | | | Joined: Oct 2010 Posts: 15 Member | | OP Member
Joined: Oct 2010 Posts: 15 | I guess I should add: if you're not comfortable posting, but could still use a Therabite, my email address is johannebertha (at) (gmail dot com).
Polymorphic Low-Grade Adenocarcinoma (PLGA), dx'ed 9/10. Surgery 10/20/10--resection of soft palate and right hard palate. Of the 36,000 oral cancers dignosed in a year, I get the one that sounds like a golf tournament. Sheesh.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I know there are several OCF members who could use the therabite. There is even a thread devoted to this that another member started. Your generosity is very kind.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Johanne, Thank you so much. Here is a post I started and there are a couple of people here who need one: Therabite Pay it ForwardDeb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
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