#1250 05-24-2003 01:57 AM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Nov 2002 Posts: 541 | I wonder if Brian or anyone here can give me some input on having a test by PET/CT scanner. I attended a talk today by a private hospital on cancer diagnosis and treatment. The speaker highly recommended using this for cancer detection and claimed that this is the most advanced and accurate equipment so far available. This scanner is a combination of PET and CT. The private hospital is making some sort of promotion and with a referral from a public hospital, the test costs about USD$1200. Since I was treated in a public hospital here, I never had a PET scan and my oncologist said that it always shows false alarm. My question is whether it is worth taking this scan as a follow up test on top of those I have on routine checkup like ultra sound, MRI to detect possible met.?
Karen stage 4 tonsil cancer diagnosed in 9/01
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
| | |
#1251 05-24-2003 07:20 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Karen, go here to see an article from Sloan Kettering about PET/CT http://www.mskcc.org/mskcc/html/6371.cfm
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | |
#1252 05-24-2003 01:22 PM | Joined: Apr 2003 Posts: 41 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Apr 2003 Posts: 41 | Gary- That was a great link that many of us, including Karen, benefited from. Thank you for that post! Desiree' | | |
#1253 05-24-2003 03:21 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2002 Posts: 458 | To add a little personal experience, I've had 3 PET/CT scans done at Adventist in Hong Kong, they're affiliated with Soan-Kettering some way. The worry about the false-positive comes from the way the PET part works. The PET as I understand it shows cellular activity, actually I think an uptake in glucose levels. Cancer cells are more active, so they would show increased cellular activity.
Problem is, infected lymph nodes, and damaged muscles in the healing process sometimes also show increased uptake.
My doc seems to be of the opinion that the tests might be as high as 20% false positive, but that MRI isn't any more accurate actually.
This last go around, the tests showed 3 suspicious nodes, with one being real suspicious. Needle biopsy confirmed the cancer so during the neck dissection they removed amoung others, all three nodes. 2 were cancerous, the third and some others were infected.
In a nutshell, I'd still reccomend the PET/CT based on my experience. The other good part of it is that the PET/CT computer data can be used to program the IMRT equipment for a higher degree of accuracy.
Hope this helps, I'd have to check my insurance billing, but the price seems a little steep for the test though. Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
| | |
#1254 05-24-2003 05:08 PM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | That answer could be found using the web sites search feature, and it would have found this news article http://www.oralcancerfoundation.org/news/story.asp?newsId=32 The MSK link is a good one also.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#1255 05-24-2003 10:05 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Nov 2002 Posts: 541 | Thank you all for your input. Based on the information I have read,I am actively thinking of having one and will discuss it with my oncologist this coming Tuesday.
Karen stage 4 tonsil cancer diagnosed in 9/01.
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
| | |
Forums23 Topics18,235 Posts197,106 Members13,292 | Most Online1,788 Jan 23rd, 2025 | | | |