I can relate to your situation. I was 57 at Dx, HPV + Herpes, Stage II, SCC BOT, no nodes, smoked 30 years ago, but not since, casual drinker, ex-Army NCO. They put me on Erbitux x 8 with concurrent IMRT x 43, no surgery, PEG Tube, Tx at Texas Oncology 12/09 - 01/10. Had PEG tube removed, abdominal abscess post PEG extraction required hospitalization and surgery to drain. Lost 114 LBS, regained 20 LBS once I got my taste back and could swallow, had severe dry mouth that was helped by meds. No sign of tumor on last CT scan. I am so grateful to have my life back.

I can relate somewhat to your situation. I was 57 at Dx, HPV + Herpes, Stage II, SCC BOT, no nodes, smoked 30 years ago, but not since, casual drinker, ex-Army NCO. They put me on Erbitux x 8 with concurrent IMRT x 43, no surgery, PEG Tube, Tx at Texas Oncology 12/09 - 01/10. The only reaction that I had to the Erbitux was acne all over my face and scalp and some rash on my chest, but no other reactions. I don't know if the Erbitux did any good, but psychologically it made me feel like I had a better chance of beating this thing and so far I am doing much better. No sign of the tumor on the last CT scan in May.

You have me laughing David. I threw my shoulder out trying to pat it on the back. I just did it using words and no pat. LOL

What happened Susan3175? is your sister still on the eribux?

I am schedule to have Cetuximab / Eribux prior to Radiation and wanted to know cancer survivors experience with it?

They stopped my sisters Erbitux after her 4th infusion. The acne like rash became really bad causing serious sores in her mouth. They gave her a week break from rads also but then continued rads till the 30 sessions.

Hi Susan,

How your sister doing now.
my mom is going to have Erbitux + Radia after surgery in NY city. how the surgery side looks with both treatments for you sister (such as neck)?

thanks,

Jennifer

Hi Jennifer,
What hospital in NYC? My sister was treated in Mt Sinai. My sister is doing ok. She is not healed yet but is slowly getting better..She stopped her Erbitux after 3 doses because her rash got really bad. We always get the side effects of meds though so i wouldnt panic.
She healed very well from surgery..What was your mom diagnosed with?

Hi Susan,
My mom has in NY prebyterian.
She has 4.5cm on her cheek and 4 of 50 of lymph nodes.
we decided to have Erbutax+ Radia instead of
the standard Cisplatin + Radia. Next monday will be her first
Erbitux, and Radiation a week after.
I saw so many creams sold on web., Jean's cream, Alra, Girl's cream, Elta, etc. Does anybody here has experience on any of those cream?

Thanks,

Jennifer

I will let you know the cream they gave my sister that really helped. I'll ask her.