| Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2006 Posts: 294 | Thanks to all of the well-wishers. The scan went without a hitch and I see my ENT next Thursday. I hope to get a positive call from one of the nurses there at Emory as happens sometimes. It's when they don't call that always worries me! I figure that they won't give bad news over the phone and wait for the Doc to so advise.
Bill Dozier
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Best of luck with the scan result Bill. Hope you don't have to wait too long. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | "OCF across the pond" Gold Member (200+ posts) Joined: Jan 2009 Posts: 225 | Hi all, Sorry I haven't been posting for ages. Martin is doing ok. He still has terrible pain in his neck and shoulder, but he has found out that half of the pain is due to a slipped disk in the neck that is pressing on his spinal cord. He will need another operation to fix that. It should be after Christmas. In the meantime he is being tried on some new painkiller. He has Fentanyl patches at the moment and they seem to help a bit. Apart from that Martin is now 2 years in the clear. Oh, another happy note we are having a baby in March, quite unexpected but we are really happy.
Girlfriend to Martin 49 years old at diagnosis Diagnosed with SCC unknown primary June 2008. Cancer found in single node Stage N2A (3 to 6cm). Tonsilectomy 16th june, Radical modified neck dissection left side 30th june. 30 TX radiotherapy ended 9th October First comparative study scan came back clear
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Congratulations on the upcoming bub Cecilia. Even though Martin is still having issues 2 years cancer free is a great milestone. Nice hearing from you again. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Sorry I haven't posted for a while. I still drop by every now and then but normally just lurk in the background. Somedays I try to offer advise to members on the forum but just can't seem to get the words right and sending a virtual hug just doesn't seem enough. But if ever needed I'm here.
On the plus side, Steve is still going well with no sign of the cancer. Still waiting for his jaw surgery though. Good old Australian public health system takes a while sometimes. Steve's weight is still a never ending battle but we'll get there.
Cecilia that is wonderful news for you and Martin. So happy for you both.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
| | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Well, I'm trying real hard to get back here more often.
I think my life started to go crazy when my wife decided that we should downsize and move since I was retired and she was retiring in June. Selling a house, packing it up, moving, unpacking (still doing that), have kept me so busy.
In additon to that we spent days on end visiting the hospital as two friends were in at the same time. My dental partner and best friend (for over 41 years) passed away in August after battling multiple myeloma for 8 1/2 years. Our other friend is doing well.
We managed to get away to China for 2 weeks in October and I have made a pact to try to visit the forum more regularly again.
Over the past 5 1/2 years I have only been away from the once before. It occured after a couple of members passed away and I started getting depressed.
I have always welcomed PM's and direct emails as many people over the years have felt more comfortable asking me dental questions, off the forum.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Well, I was away for awhile due to depression, and just life going crazy. I am back now and do check up regularly. I am still trying to figure out why I am having so much pain in my right arm, and my neck muscles are gettting stiffer by the day. Other than that we are plugging away. ON a happt note, My SIL just had triplets, 17 weeks early, but they are doing well. Mom, dad, and big sister have gotten to hold their hands through the incubators. I have yet to get to go visit them, but will over thanksgiving break. My husband is going for a quick trip today.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Sep 2009 Posts: 63 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Sep 2009 Posts: 63 | For me it's a little bit depression but mostly I'm overwhelmed by the forums. I still can't figure out how to maneuver from one to another and when I go back to try to follow a particular subject, I can't find it again. Sometimes I can find it if I remember who posted recently and I can backtrack from their user list but that doesn't always work. I also get so caught up in so many subjects that hours pass and nothing gets done. Still, I appreciate all the info and advice so I won't give up completely.
Pat - 62 yr. old -DX 8/29/09 SCC stage III floor of mouth Lower teeth& bone removed Port& Peg Cisplatin x3; Rad 35 - ended 12/21/09 Fox Chase 2nd opinion-mandibulectomy; tracheotomy; left neck dissection; jaw reconstruction 5/13/10; flap failed;new flap 7/13/10; lipo January 2011
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Pat - to keep up with what is happening recently, I just go to the top of this page, and click on where it says "Active Topics" and then click the same "active topics" on the pull down menu.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | It seems that every timer I think I am finished a new medical situation pops up to keep me off track. My "recreation" is outings to the grocery, Walgreen's pharmacy and medical appointments for myself and my husband. As one of my sisters says: "these are supposed to be our golden years but they are slightly tarnished." I am trying hard to get back to a normal life so no longer am able to spend the time here as I would like. When I miss a week or even a few days it seems that I am not able to catcth up so I start at the last page and try to read forward. I really miss having the time to check the forums regularly and reply as often as I used to.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
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