Yesterday I made bean and split pea soup with bacon . I wish the bites after the 1st one or 2 tasted as good. I kewpt it soupy and overcooked it so the beans were like mush. Buttered bread heavy and put the sooup over it to soak. Very easy to make and I guess good for you too.

This morning, I added not only peanut butter to pancake mix but some peach preserves as well. It was very good but a different type of preserves might have been better. Somethinmg with a more pronounced flavor like raspberry or a stroger fruit flavor.

Today I blended a can of peaches to a liquid and added it to the pancake batter, I added quite a lot and it had a great taste. I used plenty of creamry butter to it after it was done, It had great flavor, much better than preserves did.

Bringing this back up to the top for newer patients.

Great stuff on here. I have it better than many of you, in that I've had no surgery and I still have all of my tongue. I'm ~2.5 months from 7 weeks of radiation (33 sessions) with three rounds of chemo (Cisplatin). Did not require a feeding tube or port. Lost ~20 lbs during treatment.

My salivary function is very low (dry mouth). My taste has returned to a degree.

My tongue is heavily coated and I'm debating with myself if this might be an infection, or just a more-heavily coated tongue due to dry mouth.

Anything acidic triggers sore "water blisters" in my mouth and at the top of my throat, these may be "secondary salivary glands" that are plugged by damaged mucosa? Acidic things that I can't eat include tomatoes, salad dressing, red grapes, wine. Sometimes it just seems that eating too much of anything "solid" triggers these as well. It's difficult to predict what will set off my blisters and/or sore throat.

I've had good luck with bluberry pancackes and french toast (with lots of butter and real maple syrup), cheese and wilted spinach omlets with ketchup (ketchup is sweet enough to not sting?), rare filet mignon (it's very tender), rich salmon (mind the bones!), cucumber/cooked beets/blueberry salad (watch the dressing), melon (water, cantelope), steamed asperagus (again, lots of butter), baked sweet potatoes (with lots of butter), cottage cheese (good with honey, but there was a time when I coldn't eat this for some reason.....dry mouth? became a disgusting paste in my mouth), sweet yogurt.

Things like other cuts of beef, or beef that's not rare, and poultry tend to take on a "fibrous wad" character in my dry mouth and are very difficult to swallow, and drag on the way down with painful result. Also, anything that could be described as "massive and sticky" is a no-go: mashed white potatoes (you'd think they'd go down great), grilled cheese sandwich (even if chased with milk), ground beef.

Hope some of these are useful to some of you.

-Seth

Seth, your coated tongue coould be thrush. Please ask your doc to check this. It takes prescription meds to clear this up.

You are doing very well with your eating and recovery.

Best of luck with continued improvements.

Thanks ChristineB. Several weeks ago I had my Rad OC look at my tongue and he didn't think it was thrush. It's only on my tongue, and there is no associated tenderness. Also, it's been like this for quite a while and has not progressed or expanded. However, I would love to have it cultured just in case it's something like that. I will see what I can arrange.

Thanks again,

-Seth

Though not a gourmet food, spaghetti O's with meatballs was my first real food for a few weeks other than mashed potatoes and gravy. The tomatoe sauce is pretty watered down and didn't burn my mouth at all.

I am now trying to find something sweet I can eat, cake ,candy even cheese cake burns my mouth and ice cream/milk shakes taste terrible and I am not a big fruit eater

Are these food ideas okay during treatment too or just post treatment?

This list is easy foods for those of us who struggle to eat. They are softer and usually not spicy so will be better tolerated in sore mouths. Its not specific to only after treatment. It would be good to eat for anyone with a sore mouth or any of the other issues faced by oral cancer patients.