| Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | My husband's cousin said the same thing! Actually it was, "did you have a stroke or something?"
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | We had our Oral Cancer walk today. Someone wanted to know my story so I sat down and told her. She then said she wanted to aska personal question. She prefaced by saying that since I did not msoke, drink, or have HPV and was so young, "was there a relationship with this cancer and my weight?" I was really offended by that comment. I did not let it show because she drove three hours to come to the walk, her daughter is a student of the OU dental hygiene clinic that helped organize the walk. It sure made me angry that someone could even bring up weight into the picture.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | Angelia, you handled that with grace! Good for you. She was insensitive and ignorant. Next time someone offends you, throw it back to them by asking, "why do you ask that? Have you done any clinical research on the relationship of (weight) and OC?"
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
| | | | Joined: Nov 2010 Posts: 36 "OCF Canuck" Contributing Member (25+ posts) | "OCF Canuck" Contributing Member (25+ posts) Joined: Nov 2010 Posts: 36 | When people on the street ask how I am, I always smile my now crooked smile and always say " I am fine thank you, for what I have I am doing very well...how are you?" I find it puts people at ease and they can either escape easily or stay to chat.
55 yrs, Female, smoked for 4 yrs 35 yrs. ago, SCC right underside tongue and floor of mouth, laser surgery took 1/3 tongue Aug 2010, 3 weeks later in Sept right neck dissection 40 nodes removed with 1microscopic spot in one node. No chemo or radiation.
| | | | Joined: Nov 2010 Posts: 36 "OCF Canuck" Contributing Member (25+ posts) | "OCF Canuck" Contributing Member (25+ posts) Joined: Nov 2010 Posts: 36 | Angelia good for you, that was handled with grace as Anita said. Some people are clods.
55 yrs, Female, smoked for 4 yrs 35 yrs. ago, SCC right underside tongue and floor of mouth, laser surgery took 1/3 tongue Aug 2010, 3 weeks later in Sept right neck dissection 40 nodes removed with 1microscopic spot in one node. No chemo or radiation.
| | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2008 Posts: 711 | I want to point out that the ignorance does apply to other conditions. My step son is 42 and has had type 1 diabetes (juvenile onset) since he was 9. He works out and eats carefully, aside from the occasional junk food which he has to pay for by taking more insulin, and even though there's hardly an ounce of fat on his body people are constantly thinking that his lifestyle somehow caused his diabetes. He gets very upset about that. It's type 2 diabetes that is associated with lifestyle. No one knows the exact cause of type 1. But then of course people assume that my lifestyle caused my cancer, and maybe that's true, though I quit smoking 22 years ago and have been a light drinker for quite a few years. I can't remember the last time I was actually drunk but it's been years. But if you have one of these diseases, why, you just must have done something to bring it upon yourself, right?
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer. And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer. May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | I just had a conversation about cancer with my sister, who is a Nurse Practitioner. She has been in the oncology arena for quite a while. The bottom line is that we can do everything right and still get cancer. The misconception among many people is that those who have or had cancer must have done something to get it, like eat the wrong foods, not flossing, too much stress, etc (the list goes on). While many behaviors have risks associated with disease, and there are other behaviors that have benefits associated with health and vitality. Anyone can get cancer.
It's a challenge for anyone with a serious health issue to answer probing questions by the curious regarding lifestyle choices. A strategy that works for me is to refer the questioner (especially if it is not a family member or close friend) to this website for OC, as well as other respected sites for more information (NIH, ACS, etc). "If you are really interested in this disease then I encourage you to go to (OCF, NIH, ACS) to research more on this because you really don't know what you're talking about."
When others overstep that boundary and their questions or comments make you feel bad, angry, hurt, or misunderstood, empower yourself to take a stand.
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
| | | | Joined: Nov 2010 Posts: 74 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Nov 2010 Posts: 74 | How about this one....A coworker tole me that if I had gone to church every Sunday and knew Jesus I wouldnt have cancer! Who knew?
4 cancerous tumors stage4 Surgery 10/26/2010 Radiation 2x a day for 4 weeks (started Dec 13th 2010) Reccurance discovered Nov 2011. Tumor behind left jaw. Erbitux, Taxol and Paraplatin for 6 wk. Surgery scheduled for Feb 50 year old woman smoked for 30 years quit 3 years ago light drinker HPV +16
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Plantgirl I'm pretty sure your co-worker wasn't Catholic. We even have Patron Saints of Cancer, like St. Aldequndis, the Patron Saint of Breast Cancer who died of that cancer. (I first learned of her at a Komen Walk for the Cure blog) The Catholic party line is that the Saints certainly knew Jesus. Plus we have a generic Patron Saint of Cancer: St. Peregrine Laziosi Finally, I know I'm wicked but I would share this video with your co worker. It's from CNN about an oral cancer patient who saw Jesus in her MRI. And I'd tell the co worker that Jesus was in my MRI also which means you plantgirl will be taken up in the rapture and your co worker is going straight to hell. JESUS in my MRI Keep the Faith Charm
Last edited by Charm2017; 11-23-2010 05:22 PM. Reason: typos
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | PLantgirl, that is awful. I got to church every Sunday and am a Believer and I still got cancer. He is the one who helped me through it.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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