| | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | OP  "OCF Down Under" Senior Member (100+ posts)
Joined: Sep 2010 Posts: 179 | Well I've been thinking how well I've been going. Physically and mentally ive been so good. Going back to work half days, five days a week and really enjoying it. I've dug myself out of the black hole and is back to my happy self. Then what happens? I look in the mirror and notices that I've developed a double chin! All would be ok except that I'm only 47kg and have not put on any weight over the last few weeks but for some reason the area from my chin to my neck have swelled. It doesn't hurt at this stage but I'm in complete panic mode!! I don't know what it could possibly be. A few people have been telling me I've put on weight which I thought wad quite funny since I haven't. NowI know why- I look like I've put on weight in the face because if this double chin that I've developed. Now I have to wait til mon to try and make an app with a doc - guess no sleep til then. I dont want to tell my husband or family and make them worry too. Any comments or opinions would be welcomed. Thanx for listening guys.
Minh
Last edited by minniemoo066; 11-06-2010 07:58 AM.
35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
| | | | | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | | OP "OCF Down Under" Senior Member (100+ posts)
Joined: Sep 2010 Posts: 179 | And I didn't have a double chin when I was 9kg heavier before tx.
35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
| | | | | Joined: May 2010 Posts: 2 Member | | Member
Joined: May 2010 Posts: 2 | minnemoo
My husband developed that "double chin" after chemo and radiation also. His radioligist told him it is called a dulap and it is caused by drainage. But he said it should go away within a year. | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Get some sleep, Minh - My son also had that "double chin" and he was no heavyweight before cancer and lost a lot of weight with Tx. Not sure how long it took to go away but he sure doesn't have it now. And he's gained back all the weight he lost.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | | OP "OCF Down Under" Senior Member (100+ posts)
Joined: Sep 2010 Posts: 179 | Really??? It really doesn't look or feel sinister but god it freaked me out when I saw it. It does kinda look like excess fluid build up. Trying to calm myself down, but I can't believe how easy it is to go from being ok to being in complete panic! It's 3am and i have yet to sleep, I keep thinking about it and praying that it's nothing ( I was never a religious person before). Thanx for your replies Anne Marie and Mickie.
Minh
35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
| | | | | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | | OP "OCF Down Under" Senior Member (100+ posts)
Joined: Sep 2010 Posts: 179 | Thanx guys, I've just typed in Dulap and found previous posts about it that David started, definitely feeling better now. Sounds like a common side effects of radiation. Thank you, thank you!!
Minh
35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Minh I have seen posts on this before and found it again under - After Treatment Issues � Swelling,turkey wattle? I have also seen it called turkey waddle and dulap and most people who have had it say it disappears with time, some using massage techniques. If you have a look you will find more information here ; http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=69614&page=1In my case with surgery only I put back the weight I lost plus some  so I have to call mine a double chin and scar down the middle that looks tighter now from the neck dissection. A bit light a zipper not done up properly! That's the wonderful thing about the forum. With a little research you can usually find the answers and there is always someone who can point you in the right direction or can answer your questions. Now after not much sleep last night try and have a nap sometime today  Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | | OP "OCF Down Under" Senior Member (100+ posts)
Joined: Sep 2010 Posts: 179 | Thanx Gabriele,
i checked up on the post. Thank god for OCF!! I would be a complete mess without it and thanx for replying guys. Truly appreciate it. I too had to request for PT and speech therapy (after reading about it on this website), it was not offered to me. I'm seeing my PT soon so i will discuss the turkey waddle with her!!
Minh
35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I am 4 plus years out and still ride my bike a lot, not as much as I used to, am not skinny nor heavy for my height, etc (just perfect lol) but that's another fable....the turkey chin/double chin/dulap NEVER goes away! It will get smaller but you will still see it. My wife has been after me for years to "get it fixed" but that's her answer to exercise. Our friend (the "fix it doc") says he can do it knowing I had rad but my RO says too risky re the healing so I continue to say no.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | | OP "OCF Down Under" Senior Member (100+ posts)
Joined: Sep 2010 Posts: 179 | Gosh David,
After what we've already been through i would not go for surgery for the turkey waddle either! Enough of hospitals and meds for me unless completely necessary! I freaked out because i thought my cancer has spread/come back. I can deal with a double chin, although not very attractive (and i'm in the fashion industry), i can live with it and so can my hubby!!! lol
\Minh
35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
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