| | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 |
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Dec 2006 Posts: 147 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Dec 2006 Posts: 147 | Procedure went fine - tumor is now encompassing 10 cm of his trachea. Dr. can put a stint in when/if the bleeding gets really bad - needs 2 days advance notice as the stint & tools are very specialized and only availabe in Boston - so they have to have time to travel to Dallas...I told him we'd fed ex them and have 'em here in a day; he talked to me in the hall and told me that the tumors are in the "very aggressive" stage...hell, what does that mean??? Dr.is more concerned w/ Jim not being able to swallow - we now have a gastroenterolgist appt. on Tues. - he is unable to keep much down when he does swallow...he has projectile vomiting....so, will try to keep him with fluids and hopefully Tues. we will know more....none of it good, I'm sure, just by looking @ him.
Thanks to my OCF family for being here.....by the looks of what EZ Jim has been undergoing, looks like my Jim is headed in the same direction.....my Jim isn't nearly as funny though....
Hugs,
Paula
Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009
Lost the battle November 23, 2010
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Paula, thinking of you and Jim and wishing you both a good day.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Paula-I'm praying for strength for you both. Hang in there and pm me anytime.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Nov 2010 Posts: 36 "OCF Canuck" Contributing Member (25+ posts) | | "OCF Canuck" Contributing Member (25+ posts)
Joined: Nov 2010 Posts: 36 | Paula I am so very sorry for all the pain you are both going thru, this is just the worst of times for you. Love to you and your family from my family.
Meggie
55 yrs, Female, smoked for 4 yrs 35 yrs. ago, SCC right underside tongue and floor of mouth, laser surgery took 1/3 tongue Aug 2010, 3 weeks later in Sept right neck dissection 40 nodes removed with 1microscopic spot in one node. No chemo or radiation.
| | | | | Joined: Aug 2008 Posts: 100 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2008 Posts: 100 | Thoughts and prayers for a good appointment tomorrow.
Tom-CG to wife, Pam 46@dx
Stage IV Tongue Cancer T2N2C
Dx 6/08, Surgery 7/08, 3 nodes positive
9/08 33IMRT/7Carbo/Taxol
4/09 node biopsy positive, mets to lungs/stomach
5/09 Cisplatin or Cis/Alimta study
6/09 Cis/Taxotere
9/09 Taxotere
1/10 Xeloda
3/10 Cetuximab weekly
6/29/10 lost battle
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Paula: You are both in my prayers. Big cyber hug coming your way
(((((((((((((((((((((((PAULA))))))))))))))))))))))))))
Keep us posted.
Donna
Last edited by Pandora99; 11-19-2010 03:17 PM.
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2010 Posts: 128 | hello my dad was diagnosed in february with stage 4 tongue cancer, started floor of mouth.. we chose to do rads and chemo first, first biopsy in august was clear! did another one in november and its back..now the ENT is saying he needs bottom portion of jaw removed, floor of mouth is where cancer is, about 1/3 of tongue and neck dissection.. how anyone experienced this? i need to prep my father for this huge surgery on dec 7.. also the ENt said he thinks he can save his base of tongue and voicebox, but may have to wake my dad up during surgery if he has to take it to ask him?! huh never heard of this either! HELP!
THANK YOU..
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux..
Painfree and rested 6/19/12
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