| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I have always been told, since my youth that things happen in 3s. When I came home today, The surgeon that operated on my 1st annwurysm and did the nissen ob my Esophagus was wanting to schedule my next scope and a dialtion. I let them know I had to go to Pittsburgh and have this anneurysm repaired the 2nd. They tried to get me lined up for this week but the Dr is scheduled for a few surgeries including 4 open heart surgeries. I will call them as soon as I feel up to the scope and dialation so that the Dr can do his thing before they work on my jaw. He doesn't want me to wait too long and also wants to do it as soon as possible. Yep, threes it must be. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: May 2010 Posts: 638 | threes is good. That must mean that once that dilation is done you can relax because you will have had your three. This means the holiday period will be free of any further attempts at the Guiness Book of Records for the most surgeries and procedures.
BTW, after 4 or 5 months on the boards, I am getting used to your typing and know that "ob" is EzJimSpeak for "of", but what the devil is "nissen"? I am looking at my keyboard and thinking "what key did he mean to hit that would make sense?" and I can't work it out. LOL
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | A nissen fundiplication is when the surgeon wraps 1/3 of your stomache around your Esophagus to help prevent that nasty Gerd from entering your throat and mouth.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Thanks Jim for the nissen explanation. With Karen, I was also looking at my keyboard wondering what key you had intended to strike. I thought maybe it had something to do with a car (Nissan) and who knew you were spelling it correctly all the time!!! Sorry for not trusting your spelling! Now, if I could figure out how to use those little smiley faces from the "full reply page" I'd sure give you some really good ones.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL you have me smiling as I read that. I was the champion speller in grade school and still know how. It's the tryping that gets me. I wondered what a Nissen was until I got one. No fun there.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Well the other 3 will be here about 7Am in Pittsburgh. Anneurysm repair time and I hope the end of those things.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Jim,
As you prepare for your big day tomorrow, I wish you an easy, restful night. You will be in my thoughts and prayers. I am also sending you tons of positive vibes. You'll probably be out of it for a day or two, but please know how much you are loved here. I am just one of many here on OCF who are pulling for you. I will be anxiously waiting to read your posts again when you are up to it. Take good care of yourself. You will be missed.
(((((hugs)))))
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Big hugs and positive vibes from me, too, Jim! Hope everything goes exactly the way it should today. Let us know as soon as you can how you are doing.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I am home... I got to Pittsburgh about 5:45 and went right thru the routine. Everyone was great and nice but sure asked some questions after reading my chart. Then I heard the familialar , How in the world can you stand ll of what you have been thru and still smile and be alive. LOL Standard answer. I amd determined to make 100 and will with a smile and good friends. I only have 2 incisions about 1 1/2 to 2 inches from this one and no railroad tracks. I am in some pain but I actually feel great. The Dr told me to try at least one week of taking it easy. I'll do my best to keep him on my side. I hope all of you are still enjoying this nice life we have going. Luv Ya ll and a big ((((((((((((((((((((((hug to all)))))))))))))))))))
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Great that you are home now Jim. I know what you mean about all the questions but they need to make sure they have the right person and are treating the right body part. I have had a couple of minor surgeries recently and think I will get me DOB tattooed on my forehead if I need any more  Please take the Dr's advice and take it easy for a while now or this angel will get angry  Hugs and lots of love to Ya too Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | |
| Forums23 Topics18,266 Posts197,181 Members13,368 | | Most Online1,788
Jan 23rd, 2025 | | |
|
