| Joined: Jun 2010 Posts: 10 Member | OP Member Joined: Jun 2010 Posts: 10 | We are 11 wks post treatment. Thrush recurred 1 week ago, was on fluconazale, but quit taking it after 1 wk. Is there any alternative ways to deal with the thrush other than than fluco? hubby doesn't like side affects of the drug.
Drinking milkshakes, eating yogurt, soft scrambled eggs, and noodle soup. Can't eat any meat yet, and what he can eat hurts. Still have peg. follow up pet scan scheduled 11/15. Not losing any more weight but not gaining yet.
Positive Spouse Hubby had Stg IV SCC 3/19/10 rt tonsil, two lymphs, tumor HPV 16 pos, age56. smoker 6/1/10 teeth out 2x cispltn-1- carbopltn-- 35 rad ended 8/9/10 Port/PEG, lost 40 lbs,
| | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2008 Posts: 507 | [quote=positive] Thrush recurred 1 week ago, was on fluconazale, but quit taking it after 1 wk. Is there any alternative ways to deal with the thrush other than than fluco? hubby doesn't like side affects of the drug. [/quote]
I took Nystatin (liquid - swish then swallow). I don't recall having any side effects.
Don TXN2bM0 Stage IVa SCC-Occult Primary FNA 6/6/08-SCC in node<2cm PET/CT 6/19/08-SCC in 2nd node<1cm HiRes CT 6/21/08 Exploratory,Tonsillectomy(benign),Right SND 6/23/08 PEG 7/3/08-11/6/08 35 TomoTherapy 7/16/08-9/04/08 No Chemo Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | When I get thrush, I use Mycelex lozenges (generic name is Clotrimazole 10 mg troches) which dissolve on your tongue and are really effective. Unlike Diflucan which courses through your whole body and can do a number on your kidney and liver, this just hits topically on the thrush on your tongue. You might want to call his doctor for a script. You do take like five a day but it dissolves and does the trick with no side effects that I could discern. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | You may have to double up and take the diflucan and nystatin (swish and spit/swallow) to knock it out. I battled it for 3 months post treatment, once they finally said do both at once it knocked it out for good.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
| | | | Joined: Mar 2010 Posts: 126 "OCF Canuck" Senior Member (100+ posts) | "OCF Canuck" Senior Member (100+ posts) Joined: Mar 2010 Posts: 126 | Hi, Gordon has had thrush a few times and has managed to eradicate it with the nystatin swish and swallow. I think it has a lot of sugar in it, though, not the best thing for the teeth of those recovering from radiation to this area, so you have to be extra diligent about the teeth cleaning and fluoride treatments. I checked, and sucrose is listed as one of the inactive ingredients. Anne
Last edited by Elianne; 10-29-2010 05:37 PM. Reason: checked facts
Anne - CG to Gordon (59), non-smoker/non-drinker. SCC, BOT, HPV 16+, stage 3. Jan./10 - radical neck dissection to remove 48 lymph nodes, 1 node pos. Apr. 23/10 - finished 35 rad. and 3 cisplatin. Jul. 22/10 - PET scan clear.
| | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | Hi Positive
Keep going with the yoghurt but make sure it is the kind that contains acidophilus bacteria as this will help to "normalise" things. I am not sure if this will be enough without a "...zole" medication but it may help stop recurrences of thrush in the future.
What side effects was your husband having? There are other ...zole type medications that can be substituted if need be and it will be the fastest way to get rid of it. Also, maybe the side effects weren't fluconazole - cisplatin and radiation effects can go on for weeks after they finish. My Alex only just stopped feeling nauseous in the last couple of weeks after finishing in August. He still feels just blah and continues to complain stomach upset every once in a while.
I have also read that zinc supplements help but have no experience or knowledge of why
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
| | | | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | "OCF Down Under" Senior Member (100+ posts) Joined: Sep 2010 Posts: 179 | Hi,
I think the lozenges are probably the best alternative as the nylstat has sugar in it. I dont know about everyone else but I try and avoid sugar as much as possible - I've turned into a sugar Nazi. But I'm really scared of rotting teeth and What it means for us who have had radiation.
Minh
35 Yrs old 03/10 SCC T1-T2 Partial Glossectemy end March - margins not clear enough. While waiting for resection - cancer returned,2 new cancerous lumps Re-section End May & flap from cheek attatched. Margins clear. Mid June - 4 teeth out Mid July -32 Rads and 3 Cisplatin 6th Sept 10 Finished Treatment!!
| | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | I have my pharmacist mix a suger free Nystatin so it can be done. I'm on a daily maintenance dose to keep thrush out of my voice prosthesis. I was never able to cure a full fledged thursh infection with Nystatin alone.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | Joined: Jun 2010 Posts: 10 Member | OP Member Joined: Jun 2010 Posts: 10 | Thanks for all the posts. The Thrush is gone now, but if it comes back will try your suggestions. Good news is Cancer Free from the pet scan on 11/15/10. But now lost hearing in other ear, and go to ear specialist 12/1. He was told the radiation is a gift that keeps giving. Hope the loss isn't permanent.
Positive Spouse Hubby had Stg IV SCC 3/19/10 rt tonsil, two lymphs, tumor HPV 16 pos, age56. smoker 6/1/10 teeth out 2x cispltn-1- carbopltn-- 35 rad ended 8/9/10 Port/PEG, lost 40 lbs,
| | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Mar 2008 Posts: 404 Likes: 2 | Postivie
Congratulations on your husbands clear scan. I see your husband had chemotherapy, Cisplatin is also known to cause hearing difficulties. Hope his ear specialist appointment goes well.
Karen
46 yrs: Apr 07-SCC 80% entire tongue removed,T4N1M0 Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs 30 x rad,6 x Cisplatin, 30 x HBO Apr'08- flap Recon + ORN Mandibulectomy (hip bone to reconstruct jaw) Oct'08 1 Plate out-jaw Mar'09 Debulk flap Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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