| | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Today when I went to appointment at TU I gave some of the OCF bracelets to drs. and staff and left a few behind. They made a big hit and I will take more when I go in 3 weeks. I have a few other appointments this mo and next and will put them in my purse for then. Dr.F took 2 one for himself and one for his wife.
I decided that it would be better to give the support brochures to the nurse to give directly to patients and leave the what you need to know brochures in the waiting area.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Thanks Malka!! The bracelets are popular, and a great way to get the word out.
If you ever need more, contact Megan!
Thanks for all you do!
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 |
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Yep, I need to get more, I end up giving mine away whenever people ask and I share my story. I just wish they had smaller sizes too, my kids want to wear one and mine slips right off too if I'm not careful.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | Suez - They are referring to the burgundy silicone wristbands that say "MAKE ORAL CANCER HISTORY" ON THEM. They look pink in the OCF store picture, but they are definitely dark red. We didn't make any children's or small size bands, because we didn't think there would be much demand for them. But if enough people want them we could make a few hundred on the next go around in about a month. If enough people want them, please send a message to Jamie@ the OCF office and she will start a list to see what the demand is. They take about 3 weeks to turn around. http://www.ocfstore.org/Oral_Cancer_Foundation_Products_s/4.htm
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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